suction

  1. M

    Help my mother

    Hi everyone, Not sure where to start but I wish I can find some kind of help... Mom was diagnosed a bit more than 2 y ago with bulbar onset. It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...
  2. lgelb

    Seattle and beyond: supplies, bed, w/c

    Since Larry died, we have a lot of stuff to pass on. Let me know if you'd like to come by and grab some -- we are in downtown Seattle. Items include Prevalon boots, pillows, foams, cushions, rx/OTC, Sage wipes, wound pads, ointments, wheelchair ponchos/blankets, shirts, pants, hoodies (XLT -...
  3. E

    Saliva is SO bad! Radiation?

    My poor husband is having a terrible time managing his saliva. He gets Botox shots (an equivalent, better product actually) every two months. They increased his dosage by 50% last time but it has worn off and is such a problem. He also has a prescription for Dicyclamine, he takes two pills...
  4. D

    Dynavox, wheelchairs, cough-assist and more

    My beautiful wife lost her battle with ALS just about a year ago. We have a good amount of equipment and some supplies that have been stored away. I would love to be in a position to donate everything to someone in need, or even our local ALS association chapter, but our finances took a major...
  5. T

    :'(

    I think we've got pneumonia..or a lung infection..or something. Last couple days Haydens swallowing/choking/mucus has all of a sudden gone crazy. Have hardly slept since Tuesday, coughing, choking, gasping for air. Hasn't eaten more then a piece of toast.. Had Dr in yesterday, he prescribed the...
  6. S

    Condom Catheter

    For all my CALS who have knowledge (nurses) or have put on one of these cussed things, I need help. It is becoming harder -not a good choice of words - more difficult to put on Joe's condom cath. I've been using them for the last couple of months and all of a sudden, I'm having trouble not...
  7. adozi

    Elective trache?

    I'm thinking about this, before the vent. The respiratory therapist at ALS clinic recommended it as an easier way to suction and a step towards the eventual vent, so my family can learn to care for the trach first and then the vent. Has anyone heard of this? I'm all about being practical and...
  8. W

    How much longer?

    My mum has deteriorated and become much weaker. Mum was diagnosed 18 months ago with Bulbar onset. She had aspiration pneumonia 12 months ago and been fed via PEG tube since then. She can't swallow anything anymore and can now not speak. She uses an ipad to communicate. She has become weaker in...
  9. M

    Choking on Phlegm

    Tonight we had to call 911 as my mother was having a choking spell. She wasn't eating anything, she just starting choking on her phlegm. She couldn't stop, and we couldn't help her. We kept taking it out with our fingers, making her spit, patting her back. It has happened a couple of other times...
  10. O

    Homecare Medical equipment (buy everything or separate good prices) - $900 (Granby,ma

    HI we are selling all this equipment is used but is in really good condition.................... Everything together 900.00 obo ...............Pick up only, sorry I will not mail anything...
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