suction

  1. J

    Questions about NIV vs. Trach (and vent?)

    Hi everyone! I'm new here, but my dad was diagnosed with ALS in March '16, and had been showing symptoms for maybe six months prior. His progression seems to be moving pretty fast, as he is using the bipap and sip 'n puff now, and has some movement left in his lower left arm and head/neck, but...
  2. J

    How can I not be a monster during the night?

    I need to figure out how I can be less crabby during the night when my husband needs me to turn him or suction him. I realize there's no answer for this but this is something I need to work on. I sleep soundly so when I'm awoken by him calling for me I feel aggravated and I know that's not...
  3. J

    Venting about familiar stuff & softening resentment with humor.(at least a little)...

    Venting about familiar stuff & softening resentment with humor.(at least a little)... I logged on primarily to vent....which I intend to do. However....as I was perusing the newer posts, I came across 'Vistra's post about her college roommate coming to visit, and realized that in some...
  4. K

    Gently Used ALS Equipment for Sale

    I would like to sell the following equipment which was gently used by my family member: Philips Respironics Cough Assist Device 70T with power cord, instruction manual, carrying case and two new (in package) CA 70 series circuits, adult Lg., 6 ft. Asking $550. Tobii Dynavox I-12 communicator...
  5. T

    Eating/g tube

    My husband shouldn't be eating anything by mouth at all, and have only formula tube feeds. He refuses them. I try and he's like no,no. But he chokes every single time he eats anything. He thinks he can just eat a burger,bun, toppings. Or tacos, all. But he chokes and food gets stuck where we...
  6. J

    I need to vent

    I just need to vent and no one else will understand. I will try to keep this short. Jay's sister came up from Texas for two weeks to "help". I was really sick for one of the weeks. She did not help. Our caregiver, Valerie, told her she needs to step up because I'm very sick. She said she...
  7. F

    My journey, more questions. :)

    Hi everyone and Happy Memorial Day. As time goes on, it seems more questions come up. My neurologist retired so I'm in between providers. So, far, what has changed the most is my right hand/arm. It's getting harder to turn the ignition key, can't hold the coffee pot really anything that...
  8. C

    New kid on the block...

    Howdy y'all. Bob here. Started slurring just about a year ago. At first we thought it was a side effect to the diabetic medication I was taking. Two of them had been identified as doing such. We tried varring the dosages, stopped some, then others. The slure only got progressively worse.y...
  9. T

    Is death near?

    Hello everyone! I'm scared. I've done a lot of reading on this site, but hardly any posting. Here is my Mom's story... My Mom is 65 years old, and was diagnosed in 2013 with ALS. It all started by showing some difficulty getting dressed, then a few months after her legs, trouble walking etc...
  10. P

    Ventillator Supplies Available

    We have a tremendous amount of adult vent supplies available: Vent Circuits for the LTV 950 Inline suction catheters trach care kits Filters for the vent HMEs Email me if you are on a vent and need supplies and I'll see what we can do.
Back
Top