So, Ive been worried about the possibility that I have ALS. Increasingly extensive research has only reinforced this in my mind. Im 24 and I've been experiencing fasiculations for about 4 months. They arent localized and have been all over with varying intensity (oftentimes the ones in my neck...
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Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...
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Hey Folks,
I have a serious situation going on here, and I am hoping that some advice on here can maybe ease my mind, and or help with some answers..
I've been going on about a year and a half of having some horrible symptoms, I'm soon to be 39. This started around mid 37..
It started with...
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:confused:
Hello All,
I am a caregiver for a close friend with ALS. We are late in the stages of it, and it really seems to be moving quickly. New things every day...
My PALS is home with close friends spread around the clock to assist with the ability to stay home.
The atrophy is really...
I'm just curious as to how others have handled home healthcare in the last stages of ALS. My sister receives Hospice care, but they only come out 3 times a week to bathe her, and her needs continue to increase, so Hospice told my brother-in-law that he must hire home healthcare providers for at...
Hello everyone, This is Ismail here. I am 28 year old musician. I started having weird symptoms around one year ago, like nystagmus(i did have minor strabismus before. Started having problems with my speech which would aggerivate when under influence of cannabis.Then about 5 months ago this...
I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs.
My mother has ALS...
My husband has serious coughing and choking throughout the day and especially at bedtime and during the night. With or without food/liquids. I know sometimes it is the collection of mucus because I can hear it. He almost sounds like he is drowning. Other times it seems dry so I assume it is...
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First visit to Neurologist she did a strength exam and I failed, at the time I had a lot cramps so she prescribed Baclofen twice a day. Had to wait a month for the EMG. Started taking the Baclofen within 3 weeks I started to feel so weak. Next appointment with the EMG Test. After a week the...
First, here is a link to my previous thread here: https://www.alsforums.com/forum/do-i-have-als-als/28732-new-forum.html. I was off the forum for a year, so it closed down.
Quick background - after noticing some symptoms in late 2014/early 2015, I was referred to a neuro and had an EMG done...