stages

  1. S

    End Stages

    Hello, My mom is in the end stages of ALS. We had in-home hospice for a week when we decided together to go to the in-patient facility so she could be more comfortable as the meds at home were not doing enough. We’ve been here almost a week now and she had been more comfortable but now I am...
  2. wmilo

    New to the Forum

    Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group. My experience started with foot drop in the...
  3. B

    Visiting my sister in last stages

    Hi. I am new here. My sister was diagnosed in 2011. She has been in a nursing home for the last three years. We live 6,000 miles apart. The last time I was able to visit was four years (and one college kid expenses) ago. The nursing home is very good and paid for by her disability pension...
  4. D

    unsure if i have ALS

    Hello everybody, I'm a bit reluctant to post this thread, just because I'm unsure if i'm overreacting or if i'm right and i don't want to be either... Anyways this is my story, since 18 march i've noticed a little light headed feeling, just for a minute or so. I didn't make much out of it, but...
  5. T

    Update

    Hi - I posted here last in April. https://www.alsforums.com/forum/do-i-have-als-als/38242-my-story.html I just wanted to pop in and at least update. I had a baby 5 months ago and it would be an understatement to say I still twitch. My god, do I twitch. But it has been 18 months of it - and...
  6. J

    Scared, Need Info and Help

    Hi All, I'm sending positive thoughts to all. I read the stickie but I have questions. I have had a foot twitch start after I saw my neurologist, it is persistent, but I have twitches elsewhere too (that are not persistent). I am very very nervous. My nerologist tested my reflexes (normal), I...
  7. I

    Anterior Horn Cell Disorder

    Just received a written report of the EMG I had taken in late January. At that visit I was told that I was diagnosed with PBP. The report, however, says that although I was referred for a question of motor neuron disease, the EMG/NCS findings fall far short of electrical criteria for MND...
  8. M

    Golf/tennis enthusiast needs grip help!

    Hi all! I am new to this forum and trying to assist my favorite uncle (newly diagnosed with ALS) with making the most of his progressive grip weakness. He is a lifelong golf and tennis player and coach and still coaches currently. While he is still in the early stages, he is becoming frustrated...
  9. B

    Waiting for appointment

    I am nervously awaiting my next EMG with my neuro. Every day feels like an eternity. I really want to hear that it's not ALS, but we've ruled so many other things out. MRI's of spine & brain are clear, blood work is clear -- we keep ruling things out. My EMG for my right leg was abnormal last...
  10. D

    Very scared

    Hello everyone, I posted in this forum earlier this year in February about my symptoms, which I thought resembled the early stages of ALS. Specifically, I felt a sensation of weakness in my left hand that seemed like it was spreading to my right hand (I'm right-handed). My voice wasn't working...
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