stages

Hi everyone. My sister is in her last days. Hospice started last Friday. She is now off her bipap. Her pulse today is 47. Did anyone have signs on how much longer we have with her? It's so frustrating that I can't seem to do anything for her anymore. Any advice would be great! Thank you.

Hi, My mother has als and she is in her late stages. Is it wrong to think that i want this to be over? I just feel so stressed seeing her like this and I am tired and I just want to continue my life. I have a 5 month old baby and a wife and I feel my life is put hold on. I just feel guilty...

ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...

Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...

I don’t post here often but I you all still feel such a community and connection here. It’s been 1 year and 3 1/2 months since we lost Ted. I was thinking this morning that I used to mark my babies’ ages in months but eventually we just say their ages in years. Is it the same with marking a...

Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...

For about two weeks I’ve had twitching in my left, right legs and arms. Also have had twitching under my ribs. My right leg has also been tight lattely. It’s natural to be scared, cause I’ve read about ALS just a few days ago, and I’m curious how it can be, or not be ALS. I also have a list of...

My 80 year old mother in law is now entering what we believe are the final stages of the disease. She is almost completely paralyzed from the neck down and needs the bipap 24 hours a day. No trach or stomach tube. Her voice is relatively strong, however, and we have done the maximum to give...

Hey everyone. Thank you for taking the time to read my post, I am so truly sorry to the people that have to live with this horrible disease. I am a 23-year old male, caucasian. About four days ago I noticed uncontrollable twitching in my left leg as I was going to sleep. Twitching isn't a new...

Hello, I am 23 years old and for the past two months have been experiencing a number of concerning symptoms. The timeline of my symptoms are as follows: Feb - I work out a fair amount and was just getting back into running when I had a patelleformal knee injury to my left which caused pain...