Hi,
italian user here,35 yo male,sorry in advance for my bad english,have a long history to tell.
-My story starts with a big cramp in my left calf while i was running last day of february.
after that,i tried few times to run again but it started always to pain a lot;same period started a...
Hello, this is my first post in the forum. My thanks to all of you for taking time to read and/or respond to my post.
My brother was in the civil engineering unit of the military and was exposed to 4 1/2 tons of urea without proper protective gear. He began experiencing ALS symptoms 1.5 weeks...
abdomen
age
als
als symptoms
anxiety
autoimmune
brother
diagnosis
emg
eye
family
family history
headache
military
mri
neurologist
pain
sporadic
symptoms
test
tongue
twitches
weakness
I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs.
My mother has ALS...
Hi. I'm 53 year old female. About Jan through April of 2016, I had heavy legs, horrible fatigue. Around May of 2016, I started having bad twitches in calves and feet along with electric shock like feelings, buzzing, some painful. Went to doc, B12 and D were very low. Given high dose D and B12...
Hello,
Thank you for allowing me in your group. My sister was diagnosed in 12-12-13, she passed 5-4-15. There are 7 children total, a brother died at 22 months unrelated to ALS, all in relatively good health. My mother is adopted. Both parents 86, still living and in relatively good health. My...
I finished the Tirasemtiv Clinical Trial.
Two weeks open label, to test reactions.
48 weeks double-blind trial.
An extra two weeks due to scheduling.
My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...
ability
arm
atrophy
breathing
clinical
clinical trial
communication
death
familial
fatigue
fda
foot
hope
ice
pain
paralysis
progression
research
sporadic
symptoms
test
treatment
trial
update
wheelchair
Hello everyone; I´ll try to be brief. I read the threads, but I have doubts and fear. Sorry for my english, but my native language is the spanish. I´m from Argentina
My mother died of ALS bulbar on september 2015. I´m fisioteraphist, I can see yours sympthoms, your health decrease, you know...
It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold.
In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...
ache
als
angry
anxiety
bipap
breathing
diagnosed
falling
family
family member
fear
night
pneumonia
risk
scared
shortness of breath
sleep
speech
sporadic
support
swallowing
voice
walker
wheelchair
worry
I didn't want to be back on this site but I have had symptoms that are very concerning.
My ALS fear started almost a year ago with fear that my left hand was atrophying, I have had sporadic twitching, and other fears of other muscles cramping but nothing to severe.
For almost a month now I...
als
als fear
anxiety
back
bulbar
bulbar als
cramping
family
family history
fear
muscles
nose
possible a
saliva
scared
sporadic
symptoms
twitches
twitching
wanted