sporadic

  1. A

    Hi,my story until now

    Hi, italian user here,35 yo male,sorry in advance for my bad english,have a long history to tell. -My story starts with a big cramp in my left calf while i was running last day of february. after that,i tried few times to run again but it started always to pain a lot;same period started a...
  2. A

    Brother passed of ALS in 2006 and I have twitches

    Hello, this is my first post in the forum. My thanks to all of you for taking time to read and/or respond to my post. My brother was in the civil engineering unit of the military and was exposed to 4 1/2 tons of urea without proper protective gear. He began experiencing ALS symptoms 1.5 weeks...
  3. A

    FALS -- changing symptoms?

    I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs. My mother has ALS...
  4. C

    Please help me I'm very scared

    Hi. I'm 53 year old female. About Jan through April of 2016, I had heavy legs, horrible fatigue. Around May of 2016, I started having bad twitches in calves and feet along with electric shock like feelings, buzzing, some painful. Went to doc, B12 and D were very low. Given high dose D and B12...
  5. H

    Familial Versus Sporadic

    Hello, Thank you for allowing me in your group. My sister was diagnosed in 12-12-13, she passed 5-4-15. There are 7 children total, a brother died at 22 months unrelated to ALS, all in relatively good health. My mother is adopted. Both parents 86, still living and in relatively good health. My...
  6. Ed340hp

    Tirasemtiv Update - Final

    I finished the Tirasemtiv Clinical Trial. Two weeks open label, to test reactions. 48 weeks double-blind trial. An extra two weeks due to scheduling. My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...
  7. A

    FEAR TO ALS (my mother had)

    Hello everyone; I´ll try to be brief. I read the threads, but I have doubts and fear. Sorry for my english, but my native language is the spanish. I´m from Argentina My mother died of ALS bulbar on september 2015. I´m fisioteraphist, I can see yours sympthoms, your health decrease, you know...
  8. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
  9. L

    out of the shadows

    In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...
  10. F

    Bulbar fear

    I didn't want to be back on this site but I have had symptoms that are very concerning. My ALS fear started almost a year ago with fear that my left hand was atrophying, I have had sporadic twitching, and other fears of other muscles cramping but nothing to severe. For almost a month now I...
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