speech

  1. M

    New consultation on als

    Hi..my neurologist is sending me to a als specialist..have had tongue atrophy and slurred speech for over a year..also have hyperreflexia and neuropathy in left foot..some stiffness in left calf..I'm scared..I don't feel like I'm dying?? Otherwise I am healthy...I'm just confused and weepy..any...
  2. A

    My mother’s diagnosis

    Hello to all, As I’m sure everyone here can understand, I never thought I would need to post on this forum. My only knowledge of ALS was through the ice bucket challenge! My 70 year old mother was diagnosed with ALS at the beginning of August this year. I first noticed something wasn’t quite...
  3. H

    I'm Worried About My Symptoms

    Hi all! Thank for the creation of this thread. I've been lurking for a while, but have a few concerns now... A few years back I would notice fasciculations on my calves when getting home from work. I thought little of them at the time. Fast forward 2016. I was bit by a tick a contracted lyme...
  4. R

    Update

    Sorry to open a new thread, but nothing else seems to help. I know you told me to go to a doctor, but I physically have not had the time, and I'm going to another country for a few weeks soon. I still get back pain and my back is very sore. The muscles of my neck and shoulders also feel sore...
  5. D

    Worrying about ALS

    Hello, I am 29 years old female. Lately i am experiencing severe generalized muscle weakness (left side is a little bit weaker), muscle cramps and muscle pain throughout my body, profound overall weakness and diffuse muscle twitching and they are slowly worsening. I need your opinion about my...
  6. D

    Can it be the first signs of ALS?

    Hello, First of all thank you for all who will read my story. I would really appreciate to any comments and experiences or advises from you. I am 26 years old female. Recently i have found similar condition - ALS that could explain my illness. I know it would be a rare case of this disease...
  7. J

    Update on condition

    Hi everyone. I wanted to provide an update on my symptoms, and my apologies for starting a new thread, as my prior thread has been closed. It’s now almost been a year since my symptoms started with the following issues: 1. Upper lip twitching 2. Pain down my entire left leg, calf and foot 3...
  8. M

    Question about NIPPV machine

    My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around. At first he would only need...
  9. M

    Afraid of als

    A few days ago my left leg suddenly felt weak I cannot stand on my left leg only for more than 10 seconds.. Then I looked up in the internet and found als, and the symptoms include found slurred speech, so I paid attention to how I speak and I found out I slur my words quite often. But if i try...
  10. D

    Trilogy with Passy-Muir valve?

    I was recently switched from an LTV950 to a Trilogy. I have always been able to speak easily on the LTV with my cuff deflated. An additional 5 of PEEP from an inline valve allowed more than one or two words per breath. With the Trilogy, I am back to one or two words and it a horrible step down...
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