speech

Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...

My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...

Last December I noticed that my lower arms, wrists and fingers felt a bit weaker. I seem a lot more clumsy with my hands, knocking things over often and dropping things a lot. I went to the doctors and she did a standard neuro test that was normal. Pushing on her hands, squeezing her fingers...

As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...

ABOUT: I am selling a speech generating device with eye tracker used by my father. Bought Q4 2016, it was used for 2 months, it is mint condition, good as new with very practical stand and wireless keyboard included. Price negotiable, I can send it worldwide. PRICE: 3.500 $ CONTACT: You...

Hi All, First I wanted to say thank you to all of the folks who take the time to read these posts and share their opinions. I've been reading on these forums for a little while now and figured it was finally time to share my concerns... Before I go into detail about my story, I'll quickly...

I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...

Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...

I would like to thank all of you in advance for reading my concerns. I am 39 yeasr old male. It all started in july last year. Initially i was suffering from burning pain in my arms and legs. I went to a dibatologists. But my sugar level came normal. Then I went to a neurologist. He adviced some...

my speech quality falls rapidly. i tried to find exact reason for that: touch my nose with tongue (i can), it (tongue) has lateral fibrilations, but not atrophy, eat better than before (gained 3 kg), swallow ok, whistling ok, no more caugh... finally, they checked my mouth with emg, it is ok. my...