seizures

  1. olly

    mitochondrial desease?

    this is something i have done exstensive research on over the past two years. why? because i have a niggling feeling this could be in the family and could be my true diagnosis. yes you read right,heres a few facts. i had a brother who died about 18mths old ,i was about 5yrs old at the time. he...
  2. Huskermom1

    In case you were wondering......

    Brief history: Husband had severe cramps, seizures, positive babinski, clonus, weakness compared with one side vs the other. EMG showed no signs of LMND but did show thoracic nerve palsy. All other $20K worth of tests NORMAL with our last visit. Diagonosed with Stiff Person's Syndrome (doctor...
  3. Huskermom1

    Should I be concerned?

    Husband is in testing phase. Doc appt tomorrow to follow up on the 43 blood tests ordered and for the thoracic MRI (which was the last part of the spine to be done since all this started.) I know the MRI is clean except for encroachment on C6-C7 to which he is being treated. EMG from the past...
  4. Huskermom1

    $$$ Assistance

    I have posted once before. My husband is in the "testing" phase, so as of right now, he only shows signs of UMND and seizures (they progressed to grand mal as of a couple days ago and is being treated, accordingly.) Our house was up for sale, before all this has happend, and we have decided...
  5. Huskermom1

    What could it be? Am I in the right spot?

    I am posting this on behalf of my husband who is displaying some very scarey symptoms. Any input on his symptoms would be greatly appreciated. (I realize that some or all of his symptoms may not be related to each other but just knowing that I am in the right place or can be directed to the...
  6. catcaniac

    ALS and seizures

    I searched a bit around on the forum and couldn't really find much. I wondered if any other PALS on here have seizures. My husband's issues began after a grand mal seizure last April. He had been having aura's for about 2 years. Although they did find a benign cyst in his brain, the doctors...
  7. J

    Not sure what to think

    Hello all. I came here because I don't really know how to wrap my mind around anything at the moment. My Uncle Glenn was diagnosed with ALS yesterday afternoon and was given approximately 2-3 years to live. I don't know what to expect, what to think, how to cope with what I'm feeling... My mom...
  8. TithensGuardian

    Dynavox Vmax

    Hi Everyone (I hope this is the right section for posting this David? Please move to the right section if it isn't, thank you) My partner has multiple disabilities, is non verbal, uses AAC to communicate and is diagnosed with Severe Autism Spectrum Disorder - He also suffers with multiple...
  9. Alyoop

    Beware of playimg with doses!

    Oh silly silly me. Just cause I am a nurse, I should not play around with my medication. Just got my drivers Liscense back a month ago (I have epilepsy). I was so excited. No more getting rides with people and waiting for hours for rides home from worK. I decided that I would stop my Baclofen...
  10. R

    Would clonazepam (Klonopin) affect an Emg?

    Hi all, :-) I never thought to ask but would a small dose of Klonopin (.5mg) affect the emg results? This is an anti-anxiety medication but its used for seizures. Its a benzodiapine. Anyone know? TY!
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