saliva

Hello, all, Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar...

I have been having a very hard time with saliva. It has really gotten worse in the past 3 months. My neurologist at the ALS Clinic has given me two medications. One is a capsul and the other is drops under my tongue. They help, but very minimally. Her suggestion is to get Botox injections...

Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...

hello every one my name is Najib and i have father who been diagnosed with ALS 6 month ago and i want to get more info if that possible. with ALS my dad has been diagnosed with hypothyroidism and need an urgent Surgery to totally removal of the thyroid gland . but his doc said he cant do any...

My problems started all 3 months ago. Everything was fine before. After some extensive jogging, my calfs felt stiff. Ok, thats maybe normal, i thought. But it didn`t disappear. Also, i mentioned twitching on both sides. After doing some more sports in the next two weeks, twitching was more...

My mother found out that she’ll be able to start radicava soon and Medicare is going to cover the entire cost! She also had a feeding tube put in last week at Mass General and it went well. She can still eat relatively normally but gets tired after a while and has lost a little weight. She...

Well, recently been noticing stuff going down the wrong way a bit more often. Still just randomly. Just thin liquids and saliva. Not very often. Saw doc... he says not ALS.. he's not worried and if he was he'd tell me. He asked if I had trouble with food.. and I said no. I asked how he could...

Hello, I am 29 years old female. Lately i am experiencing severe generalized muscle weakness (left side is a little bit weaker), muscle cramps and muscle pain throughout my body, profound overall weakness and diffuse muscle twitching and they are slowly worsening. I need your opinion about my...

Thankyou for your time. I'm a 35yo mum of 2 young children, and initially visited a neuro 2 years ago to assess numbness of the skin on my big toes - I realise numbness points away from ALS, but want to give a full picture. It persisted and he said to re-visit if it hadn't improved so I did...

Hello everyone, I'm new to the forum. My dad has just been diagnosed with ALS, and likely a few years into this devastating disease. Can anyone point me in the direction of how I can obtain the medication Nuedexta? We live in Toronto Canada. He has bulbar onset and saliva and speech is a big...