sad

Hi everyone, My daughter and I were going to fly out next month to see my dad again, but today my mom said hospice told her we needed to come sooner if we wanted him to know we were there...This is such b***s***!!! They think maybe a month and he will be gone.. I'm so angry and sad!!

Hi and thank you for this forum. In my sheer panic days I was a regular poster ands always treated courteously and kindly -even the tough love I was given was correct and well intentioned.. I am still in limbo land. Diagnosed as we stand by an excellent UK mnd/als centre with bfs and...

Tomorrow is mine and Cliff's 20th wedding anniversary. It should be such a happy occasion. We should be on a beach somewhere enjoying life... I don't know how to not be anything but sad!! I want to make it a happy occasion but I just don't know how... There is honestly nothing that my PALS...

Brian was diagnosed with ALS. We had known for since 6/15/2016, when suddenly one day his left hand could no longer do what his right hand could. Added to the foot drop, the dirty EMG, the clean MRI and blood work I knew for sure there was no other explanation. He still held out a little hope...

Does anyone have experience with FTD in their PAL? My husband is a slow progresser diagnosed 4 years ago with bulbar and hand onset. I noticed a reference to FTD in a different post and had never heard of it, but have been so sad and frustrated with recent changes in my pal that now I've...

My mom was diagnosed one year ago today. So much has happened and yet, I remember those days leading up to the day and "the" day like it was yesterday.* I had already been told it was likely ALS a week prior, but I only told my parents we were being sent to another doctor who knew more about...

My 70 year old brother in law went from having drop foot to being on a ventilator in about three months! He had been seeing doctors during the progression, but ALS wasn't diagnosed until late April. After three weeks in ICU, he was moved to an acute care hospital where has spent two weeks...

With the 1 year anniversary past without to much sadness and My Son getting called back to his job and My Daughter getting into every college she applied to with many scholarship offers I feel like I was in a decent place. My new G/F is wonderful understanding and loving to the 3 of us.. My...

My dad has been at the hospital all day due to constipation and now nausea. They need a cat scan of his lungs and the doc told my mom it looks like pneminoa, but very little and they are going to start him on antibiotics and do cultures to make sure that's what it is. Those will take a couple of...

I got my probable ALS diagnosis on May 24th, days before my husband and i would leave on an anniversary trip to California. We have shared this horrible news with some family and our kids. This is just overwhelming and I am so confused as to why we have to wait 6-8 weeks for a followup at the...