sad

https://photos.app.goo.gl/ar2kXxEgUT8chLQ63So, I was ecstatic when the doctor's told me that I don't have ALS but Dr. Harati insists that my fasciculations are benign and he wants to do the wait and see approach. Dr. Killian recommended me that I see Dr. Aziz Shaibani in Houston. Almost 4...

Hi, Just looking for someone to talk to. I feel so depressed the past few days. I mean I've been sad and have my moments but it just feels like it's taken over my body. I keep picturing Jay when his breathing slowed and then his final breath. I go to work every day and then to go to my...

My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...

My PALS, H (Harry), passed away very early Sunday morning, October 1st. His children and I were with him and we were able to keep him comfortable until the end. I can't write details - I'm struggling to get this out. My heart is so heavy and I can't believe it's over. Hospice had just told us...

whenever I feel sad, I come here to this place with all of you. it is like my safe spot--I know how all of you feel and you know how I feel...some of you know me, and so many new people here have no idea who I am. but I know you love me and understand me just coz... This is my sad month...I...

Yesterday I had my first fall as a fairly new PALS. Here's a bit of background and the story. My passion is playing the bassoon with a very good orchestra. I know my bassoon days are numbered, thanks to ALS, and I've arranged to have a backup player assist me with some of the pieces to help...

That is what this forum is to me. I am happy for any constructive, supportive things I can do for others but I honestly just love how I can say what I mean here about my own life. People ask me how Brian is, bless their hearts. I appreciate it, and I say he is okay/stable. I may change that to...

Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...

I know I am 100% guilty here also for not posting a lot, but what the heck happened to everyone discussing PLS? When I joined this forum in April of 2008 it was the place to be. I remember refreshing the PLS page every hour and there were new comments or topics. Now the last post was from 07/02...

Hi all..... So, I see this approaching. This time that will be sad and changing. When my husband will not be able to participate fully. He is now still driving and going to work but cant pick up anything heavy, speech is slurred, and has trouble with stairs. It truly is so hard to live in this...