sad

It's been a long time since I last posted. My PALS is still hanging in, defying all predictions. It's sometimes hard to believe it's been over 5 years. He's reached the point where swallowing is a real issue. No PEG, he won't consent. He's saying he is choking on his saliva all the time. When I...

Some days are great , I almost forget the beast. The next day I have overwhelming sadness.I just want to crawl into bed and never come out. Is this the new normal?

My husband called me up today at work and said that he was not going to be able to let our housekeeper in because no matter how he tried he would not turn the doorknob. He DID end up getting the door open. A Life Alert is coming our way, and that will have a key box on the front of the door and...

Just had to ask all my friends and family to only contact me by text, email, DM, PM as my speech has become so week and slurred people cannot understand me on the phone. Sad day but I knew it would come eventually.

It is with great sadness that I report that my husband Steve passed peacefully on January 9th during the night. Thank you forum. You helped during a really challenging time. xo Lisa

Hi there. I am a new caregiver to a young man with PLS. Just here to educate myself and learn how best to help him. He says he doesn't want pity but my heart breaks for him. I don't pity him....I just have grown to care about him. As a caregiver is this normal? I know it's a job but I feel...

Hello,all, I am a non related caregiver for a patient who has completely lost use of all extremities, but retains voice and enough ability to swallow. I am emotionally having difficulty dealing with her family and medical care, although I say nothing while working of course. I am simply sad and...

It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her. I know she's...

This was posted on Vince's profile page today: Hi everyone so sorry my dear sweet Vince passed away this morning. He is with God in the heavenly choir. He had a beautiful singing voice before ALS came into our lives. I will miss him and my heart is sad but I know he is fully recovered because...

Hi folks, I have been spending spare moments the past few days, as few as there seem to be, reading some of the posts on these forums. Some are comforting, some are helpful, some are terrifying and fill me with dread for what is to come. Whatever emotions the posts inspire though, it seems...