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  1. R

    Think I have ALS and have some questions

    So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
  2. pdcraig

    What now?

    Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
  3. J

    Meltdown

    Well, I had a pretty epic meltdown this morning. Nothing all that significant happened, but boy did the flood gates open. DH had just called me to get him up. He asked for a good morning kiss. As I layed my head on his chest for a hug, I just completely lost it. Sobbing tears. The kind...
  4. N

    Bit of a meltdown....kind of embarrassed

    I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...
  5. J

    20 years old male with symptoms indicating some MND.

    Hi, First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long...
  6. C

    Dysphagia/Respiratory onset

    Hey guys, first of all, I'm very sorry for all your struggles with ALS and I do not wish anyone to have this terrible disease. About me, I am very scared of ALS for like 3 weeks now. It all started about 9 months ago. I've started having very strong coughing issues while eating/ even drinking...
  7. KarenNWendyn

    What keeps you going?

    My progression seems to have sped up these last few weeks and is causing havoc with my left hand function and my soft palate function, possibly also my breathing. This is making it hard for me to continue playing my bassoon, which has been my passion and joy for the past 44 years. I can...
  8. C

    Touching Base

    It's been 5 and a half weeks since Mom passed and it has been such a whirlwind, but I've been thinking about the folks here with such gratitude. (I've typed five summaries of these last weeks and keep deleting them. Suffice it to say that they've been busy and good and sad and maybe I'm...
  9. N

    Family member positively reflecting on life and loss

    I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...
  10. B

    frighten and foolish back

    my last thread was closed I have been going round and round with notorious twitches and feet achy weirdness for a while below is time lin nov16 bilateral feet feel strange jan 17 emg diagnosed with neuropathy with normal ncv may17 emg diagnosed with sensimotor poloneurapthy with normal ncv aug...
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