running

  1. K

    Confused upset scared

    I have been reading posts on here for about 3 months trying to figure out what Is happing to me. Any an all responses would be Appreciated. I’m a 40 year old male about 6-7 months ago I would wake up with this Weird sensation running down my left side.(it seemed to happen right after I feel...
  2. B

    Possible Onset Bulbar Palsy

    Hello ALS community, my name is Bill. First I would like to say how saddening it is to read people's stories and how brave they are fighting the various symptoms of ALS or other MND's. Good luck and God bless to all of you. My symptoms actually started about 8 months ago wo even knowing it, I...
  3. J

    MND timescales or other neuro issues?

    Good morning all, It’s a little advise I’m seeking as all the doc’s I’ve seen and test done have drawn a blank, but the fact remains, my condition is getting worst? I'm not sure what I have but I'm thinking its got to be a nero issue as everything else it coming back as clear, but I'm still...
  4. A

    Update on symptoms

    Hello, My thread was closed but I thought I’d give an update. I️ had my EMG done on all 4 limbs, and which showed no issues (even in the bicep he had previously found an issue in). Neuro believed we could eliminate ALS. However, he couldn’t address the problem I️ felt in the back of my throat...
  5. Ed340hp

    Tirasimptev continues VIGOR ALS

    I'll get to the update. The VitalityALS phase three trial ended or all participants and trials in October. All reports and data were due for submission. They now think it will be March before publication. The goal of continued good breathing numbers is holding steady. My FVC and SVC numbers...
  6. J

    Van for sale

    2011 Toyota Sienna for sale in the Lansing MI area. The van is in excellent running order. Nearly new brakes, tires, battery, wiper blades, charcoal air filter. The three recalls have been addressed. The price is certainly negotiable. If you would like to see more about it, my son-in-law has...
  7. C

    Very scared, symptoms getting worse. Please some advice

    Hi guys To begin with - sorry for grammar. English isnt my first language. Ive been reading on this forum last month and Im truly sorry for you who must live with this absolutely terrible deseace. My story is quite long and I do understand if you thinks that this is just another twither but I...
  8. C

    The Importance of Self Care

    When taking care of our PALS we often put ourselves on the back burner. I am horribly guilty of this. I have been running non-stop since February of this year. My dads progression is quick so I am constantly trying to catch up..... This is until this last week. I came down with a major...
  9. D

    EMG on Wednesday - What Should I Expect?

    Hello All, I apologize up front for having to start a new thread as my previous one got locked due to inactivity. For those who followed my initial thread, I've been dealing with a variety of symptoms since at least late March 2017. I am a 41 year old male. As a patient who uses the VA...
  10. M

    Severe Fasticulations

    I know this issue has been done to death, but it also appears like there is contradictory information. I've been suffering fasciculations in my left calf for some weeks. Lately, they have spread to my right leg and occasionally to both arms. By suffering fasciculations, I do not mean "once...
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