riluzole

I have been lurking for a couple of months but noticed when one asks a question that background is requested so thought I would start with that. On March 16 of this year I went to work (warehouse) without a care in the world. I was a healthy, active hiker with a love of nature and a crazy dog...

I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...

Hi all! I was diagnosed in October of 2017 and have found great support in some of the pages on Facebook and thought I would give this forum a try. Being 21 makes this even more frustrating because most people my age don't even know what this is, so it's refreshing to have a place where everyone...

I have been wondering if Riluzole is often recommended to PLSers since a physician asked me if I had ever considered it. Anyone here on it? Reasons you said yes? Any worries that something about it could kickstart lower motor neuron progression (I feel silly even typing that)?

I have looked into this study and had a fairly extensive discussion with the study coordinator at the San Francisco site. I am posting information about this study here in case anyone is interested. Enrollment is still open for this phase 3 study. The study is sponsored by Brainstorm Cell...

I am not sure if any other PALS have this symptom, but I have become addicted to animal shows on Netflix. I have searched through the drug sheets on Baclofen, Edaravone and Riluzole and it mentions nothing about this debilitating adverse affect. I first noticed it a few weeks ago. I decided to...

both the Atlanta va pharmacy and express scripts(Tricare program) have rilutek/riluzole on backorder. anyone else having the problem ? ? appears strange that both pharmacies would have the meds on backorder.

I was diagnosed Wed before Thanksgiving 2017! I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...

RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...

I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...