rilutek

  1. 1

    My husband officially diagnosed 9/3/13

    My wonderful, kind and gentle spirited husband began having some difficulty with his voice, tone became quiet and soft when we were praying together, he said it was allergies, later he told me he didn't know what it was and didn't want to scare me as my first husband died 10 years ago and we...
    • 1Debbie
    • Thread
    • allergies als aphasia choking coconut oil crying dementia diagnosed heart husband love muscles neurologist oil possible als rilutek speech speech therapy swallowing therapy tongue voice
    • Replies: 13
    • Forum: Newly diagnosed
  2. 1

    So many questions!

    My husband was diagnosed with primary progressive aphasia on 6/28 after I began noticing first a change in the tone of his voice and the slurred speech and it seemed difficulty finding the words. We saw a local neurologist and received this diagnosis then to UPMC Pittsburgh where he was...
    • 1Debbie
    • Thread
    • als aphasia bulbar bulbar onset coconut oil confused crying dementia diagnosed diagnosis exercise heart lung capacity muscle twitching muscles neurologist oil onset possible als pseudobulbar rilutek sad slurred speech speech speech therapy story swallowing symptoms therapy trouble swallowing twitching voice
    • Replies: 6
    • Forum: Progressive bulbar palsy
  3. K

    Rilutek & Pregnancy

    Hello, My husband was diagnosed with ALS in February 2011. He is 35, I am 32. Recently we've been talking about the possibility of having a baby. Crazy idea, right? I'm wondering if anyone knows anything about the effect of Rilutek, if any, during conception and pregnancy & if there would be...
  4. M

    Mesenchymal Stem Cell Therapy - Mayo Clinic

    Well I just got the word, I go for my screening visit week of Sept 9th. Only taking 25 participants, and with me living in VA, guess lucky I got this far.... First symptom coming up on 2 years, and diagnosis was in Jan so my timeframe is shrinking in terms of getting into trials... I...
    • mbmurray
    • Thread
    • cell clinic diagnosis drug trials rilutek stem cell stem cell therapy supplements symptom therapy
    • Replies: 19
    • Forum: Research and trials
  5. C

    question about Rilutek side-effects

    I apologize, I do not actually suffer from ALS but rather a very severe form of obsessive-compulsive disorder. there was some evidence published that Riluzole might be helpful in treatment-resistant cases and so my doctor agreed to a trial. unfortunately it is so hard to find experiences from...
  6. D

    als and sleep

    Hi, this is my first time posting. I have been on here many times but never wanted to post. My husband was diagnosed with als in April. He can no longer talk and gets all of his nutritional needs by feeding tube, also all of his meds. He has lost 45lbs. We are doing the best that we can. Just...
  7. J

    Rilutek

    I was diagnosed last month and my first prescription cost me $463.00 with insurance, this month the generic Riluzole cost me $15.00, thank God, I can't tell a lot of difference in my symptoms but will contingue taking it at this price
  8. D

    Generic Rilutek now available

    I just got back from my Pharmacy after picking up my Rilutek prescription. Luckily it only cost me $120 versus the $2,100 the prior month. My pharmacist said that the generic version is finally available. Good news. :-)
  9. C

    My Husband Has MND

    Hi Everyone, I would like to introduce myself. My husband has been diagnosed with MND. I have been lurking on this site since January of this year because ever since the first dirty EMG back in August of 2012, I have been wondering if this would turn out to be ALS. Because he is so slowly...
    • CaringWife
    • Thread
    • age als atrophy back boston cals children cramping denial diagnosed diagnosis dirty emg driving emg foot husband ice kids lonely mnd motor neuron symptoms questions rilutek second opinion speech symptoms twitches women
    • Replies: 12
    • Forum: Newly diagnosed
  10. JTorm

    FDA grants Genervon for GM604 ALS Drug

    Some news from June 27, that I thought good to share. In a huge victory for ALS sufferers, FDA granted Genervon Biopharmaceuticals a fast track designation for its first in class highly effective multi-target master regulator biotechnology drug GM604 for ALS. FDA said it met the necessary...
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