rilutek

My name is Charlene. Yesterday I received my diagnosis of ALS. I had written on this forum in November, concerned about symptoms of leg weakness, tripping and falling. Some of you wrote back with words of encouragement and promises of prayer. Thank you. My GP referred me to two...

i seen my als dr and she wants me to start taking rilutek. i know i have to do a lab draw two weeks after starting on then to make sure the liver enzymes not increasing. they say it will give you more time. what do you think.

My PALS was diagnosed today with Familial Hypercholestoralemia. I have not read much on this forum about ALS and cholesterol. Someone once mentioned it was not an issue. I don't know if that is because ALS is so much more immediate or what. MY PALS is 3 years stable, still can walk, and does...

My husband was recently diagnosed with bulbar ALS. He has been prescribed riluzole. Since we are just joining this group, I am noticing that this generic became available a year or so ago. Has anyone noticed any difference in efficacy between branded Rilutek and generic riluzole? I suppose...

I was prescribed omeprazole for GERD by the gastroenterologist who is going to do my g tube but looking at drug interactions omeprazole (prilosec) decreases the level of rilutek in the blood-not good for ALS. Any ideas of what to do?

We've beat up folks who've mentioned taking Lyrica. But while trolling thru a Zinc/Copper discussion on ALSTDI I saw this comment in a post: " Lyrica moderates glutamate (mainly lowers any excess of it)." Eh? That sounds good! ... a google search (yah, flame me) using "Lyrica moderates...

I searched, but there are so many threads on rilutek and I couldn't find anything about the daily schedule. I'm finding that I can either reliably take it every 12 hours or I can reliably take it on an empty stomach, but not both. I can get close, but not bang on. So has anyone gotten feedback...

Hello all, I was just diagnosed on Tuesday. It was not totally unexpected, although my journey has been a quick one compared to many. With hindsight, we've tracked my symptoms back to February. I was in NYC with a friend and she kept chiding me for walking slowly, very much contrary to my...

Well tomorrow I have to go in and tell my boss that I have ALS and have to file for disability. Should be interesting to see what happens. On a side note anyone know what happens to your health insurance when you get let go now-is it still COBRA for 1 1/2 years or have there been changes with...

My sister who just turned 59 yrs. old, Jill, was diagnosed with ALS on 6/25/14 by Forbes Norris Research Center in S.F., CA. They started her on Riluzole or Rilutek. They recommended she get a stomach tube put in since she had already been having trouble swallowing this whole time as well. The...