rilutek

My partner, the love of my life, was just diagnosed with Bulbar onset ALS. His speech is almost gone and swallowing and mucus are a big problem. We are trying to find answers, muddling thru as best we can but so much of what I'm seeing here is for the problems of muscle weakenss and paralasys...

Hello everyone, my name is George, I'm 19 years old and I am from Greece. First of all I want to apologise for my bad english..:?: A year ago, my father (63 years old) went to retirement but this last year he was feeling his hands weak, especially his right hand that he was using more at his...

I've spent a fair bit of time reviewing the info at ALS Untangled, and from what I know, it's a reputable site for PALS re: alternative methods of treatment. The site dismisses most of the remedies out there, although does suggest that "further research" is warranted on some items - for...

How does everyone store their Riluzole (Rilutek)? It has a pretty narrow temperature range for storage, just 68-77° Fahrenheit. I don't know what I'm going to do. It's summertime in NY now and the weather can get very hot and humid... it's been nice and cool through the present day but that will...

This is from the report by the neuromuscular doctor at Shands/Jacksonville Florida. I would appreciate your input and help with the questions I pose below. "Needle EMG demonstrated active denervation, chronic reinnervation, and reduced voluntary motor unit recruitment in the right FDI, EDI...

Hello guys! You really have a wonderful place here, and you've been a tremendous help to me and my family. My mom was diagnosed with ALS by 3 different neurologists about 3 months ago. It started by a constant pain in the nape and shoulder, resulting to her hurting when she moved or turned her...

I have been on Rilutek for 6 weeks. I am becoming increasingly nauseous, weak and tired, particularly as the day wears on. Could it be that the disease itself is causing this? My GP suggests going off the Rilutek, or talking to my neurologist about going off it. I'm reluctant because I think...

Hello! I've been poking around the forum for a few months now and I think it is time for me to face facts. About 18 months ago I started having problems with my balance. I didn't fall but stumbled and couldn't take my eyes off the floor as I walked through crowds. By the time I saw my GP a few...

Good day folks..where/how to buy? not available in our country(philippines)..please help.. my wife has been diagnosed last feb. 2014, a year now..:(

Recently I have been having a lot of stomach nausea (for the last two weeks). I have been on Rilutek since the middle of December and it has just begun. I found some older post that said Rilutek could be the cause. My last liver test did show elevated enzymes but my doc said it was ok and I...