Hello from Turkey,
My mother diagnosed last week as ALS patient. In July 2015 first diagnose was MND (motor neuron disease). Since that moment, she has taken Rilutek. At beginning of this April, a blood test was done (westernblot). And the neurologist said she has 99% ALS.
She has a weakness...
Wondering if anyone has been taking Methylcobalamin injections and what is there experience with it, cost, effectiveness? I have a prescription from neuro but have not had it filled yet. One "sterile compounding" pharmacy told me $1500 a month, another told me $300 a month and still waiting on...
Hi all, I'm Katy As much as I love new groups, I really wish this is one I didn't have to become a member of. No offense to all you great people. After about a year or so of slurred speech and my voice being reduced to a hoarse whisper, my GP sending me to a neurologist and months of testing...
Hi everyone,
I just posted my story on "newly diagnosed ".
I am wondering if anyone has tried Neudexta and
If so, what has your experience been?
I currently am taking Rilutek and Zoloft.
My neurologist prescribed the Neudexta
(for speech and swallowing issues),
but with hesitation due to...
Hello,
I work for Triangle Insights Group, a strategy consulting firm focused on the pharmaceutical and life science industry. We are currently working with a company that is developing a product to treat ALS patients. We are looking for ALS patients and/or their caregivers who might be...
Hello,
I posted on here a month or so ago under the "do I have ALS" section. Well I'm back as a full fledged member, I guess, I got my ALS diagnosis one week ago.
I had the nerve conduction study January 18th and the neurologist told me immediately when he was finished. Although he said...
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May seem to be a silly question but how long does it take Rilutek to begin working? Is it systemic and have to build up in your system? Just interested!
Need some help. I'm going off my wife's BCBS plan in January and moving to 100% Medicare with a Plan F supplement. I have been shopping for a stand alone part d drug plan and every one I've looked at in WV considers Riluzole a "preferred brand" drug and puts in in a tier 4 to 6 with a hefty...
I am guessing this has probably been discussed before, but is it ok to use energy drinks while taking rilutek? I am having huge issues with staying awake during the day and have started using energy drinks. They work but I do remember something about caffine and rilutek not being good for you...