Hello everyone in here.
First off I want to say that I have been lurking on here for a couple of weeks, and the courage I have seen from people here is beyond anything I would have expected from people in such difficult situations - all you who suffer from ALS or MNDs and all of you who have...
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Hi guys,
My dad got his tracheotomy and ventilator a little over 2 weeks ago. When we were at the hospital, he was doing fine adapting to it. His heart rate was around 70-90.
However, we just moved to a nursing facility that has a subacute section and the first week, he was doing fine. But in...
Hello, my PALS was diagnosed in May and today had his 2nd ALS clinic visit at Texas Neurology. I’m just not understanding the respiratory numbers.
His first visit in July the respiratory therapist said his MIP was -30 and MEP was 93. Today she said he was at -11 for MIP and 48 for MEP. No one...
Hello, I am 18 years old from India. My symptom is breathing problem. When I lie down I don't inhale properly, like shallow breathing because of this I can't fall asleep. I feel anxious. Sometimes I feel my head isn't getting blood. My lungs feel weak, I run out of breath while talking easily. I...
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On March 28 a little more than four months ago i started experiencing fatigue in my neck. I also noticed that solid and dry food seemed to get stuck in my throat after i swallowed and was very uncomfortable. As time went on i noticed i would wake up with my limbs feeling very weak, but it would...
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Hello everybody,
Last time I posted, I was concerned about possible bulbar als and told that my symptoms did not sound like ALS and to come back after I have seen my neurologist. Well my neurologist happens to be part of my family and I have recently spoken with her.
Although it make me happy...
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Hello friends
My father was diagnosed with MND in April 2016 having weakness in hands and diaphragm.
He later also tested positive for Lyme's and was given doxy. We saw some improvement but then his condition started getting worse. In August he had respiratory failure and was on ventilator...
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Hi and thank you for this forum.
In my sheer panic days I was a regular poster ands always treated courteously and kindly -even the tough love I was given was correct and well intentioned..
I am still in limbo land. Diagnosed as we stand by an excellent UK mnd/als centre with bfs and...
According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...
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I am wondering about the respiratory tests they do at clinic: when the therapist tests for FVC and a patient is at a certain percentage (say it's 95%), is that 95% predicted for ANY person of similar age/body/etc or is it 95% predicted of what it should be, based on the last test performed...