Hello Everyone,
I hope this is in the correct forum. My dad was recently ( 1/4/18 ) diagnosed with ALS at University of Utah. My mother and I are most likely in denial, however, something just does not seem right from all of the research we have done. I would like to have some insight from...
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christmas
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hope
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During the mechanical ventilation secretions from the upper respiratory tract accumulate above the endotracheal tube cuff .The secretions must be sucked off.A lady of my new nursing service says that it can be done with non-steril gloves. I think that's dangerous nonsense. What do you think...
Hi everyone
Try to make long story somewhat short.
It started after 10 day long flue-like symptoms in aug. Followed by left-sided chest pain and then breathlessness at exertion. Pain subsided and my breathing issues has stablized somewhat. I have to sleep with inclined bed to not wake up of...
abdomen
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motor neuron disease
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Dear PALS, I've been reading so many threads and posts since June 2017 and today I decided to post for the first time. First of all, thank you for all those informative posts and everyone that takes there time to answer.
I will try to keep the post short, but it it's very complicated so please...
age
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breathing problems
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clinic
denervation
diagnosis
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mestinon
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possible als
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shortness of breath
stress
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vision
weight loss
Hello ALS community, my name is Bill. First I would like to say how saddening it is to read people's stories and how brave they are fighting the various symptoms of ALS or other MND's. Good luck and God bless to all of you.
My symptoms actually started about 8 months ago wo even knowing it, I...
als
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bulbar pals
clinic
dentist
dying
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love
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I went for my clinic visit a couple weeks ago and the neurologist suggested hospice. I've lost 18 lbs in 3 months. I knew I lost some weight but not that much. My FVC was 39, down from 41 three months ago. Both my husband question the accuracy of this reading as we've both noticed a...
I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult for him and the rest of us to sleep. And I just don't know what to do!!!
It seems that the reason for his cough is a partial collapse of his left...
Hi everyone,
I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...
Hello
I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions.
I was hoping to get some information on the Bipap vs the trilogy. My...
So, my husband has just recently agreed to a PEG placement, and we are actually scheduled for it 12/5th. He has no problems chewing, swallowing or talking at the present time. However, his respiratory state has continued with a predictable decline. I have read here on the forum that PEG...