respiratory

  1. IgorZilio

    Update: ALS diagnosis

    Well, I went 2 weeks ago to see the ALS specialist and he gave me an official ALS diagnosis. It’s been really hard to accept/understand this. My whole life is falling apart, I live alone and far from my family, so I decided to go back home to have more support and also because everyone is super...
    • IgorZilio
    • Thread
    • age als angry arm back balance bulbar diagnosis falling family hope life respiratory scared stop working support tests update weakness worried
    • Replies: 20
    • Forum: Newly diagnosed
  2. C

    Symptoms persisting. Respiratory Onset?

    Hello all, some of you may remember I made a post about a month ago concerning my symptoms. That thread is now closed but I will summarize everything here. My concern is that I have been having very concerning symptoms the past 2 months and I am worried about my health. I will break down...
    • ConcernedTeen
    • Thread
    • advice age als arm back bfs brain bulbar diet emg frustrated muscle normal emg nutrition onset pressure problem respiratory shortness of breath stress symptoms tests twitches twitching weakness worries wrong
    • Replies: 5
    • Forum: Could this be ALS?
  3. F

    C9orf72

    I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...
    • Faith27
    • Thread
    • back children diagnosed early family fear foot onset questions respiratory respiratory failure sleep stress twitching weakness young
    • Replies: 5
    • Forum: Familial ALS (FALS)
  4. E

    Here for an opinion

    First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...
    • eaglesfan
    • Thread
    • age anxiety cals diaphragm flu health helpful mistake muscle onset respiratory respiratory onset shortness of breath symptoms twitching weakness
    • Replies: 4
    • Forum: Could this be ALS?
  5. M

    Link with OCD and ALS??

    My dad was diagnosed with ALS a year ago, he has respiratory onset. Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he...
  6. S

    Concerned about Bulbar symptoms and respiratory issues

    Hello Everyone, I have been on here before but tried to stay off, last time i logged on was in 2016. I will keep this short as i have been getting some new symptoms and need some advice. I have voice hoarseness issues which come and go but my voice been bad for almost 4 months especially my...
    • Sandylee
    • Thread
    • advice allergies als arm breathing bulbar bulbar symptoms choke choking concerned coughing emg food issues muscles pain respiratory speech swallowing symptoms testing tongue trouble swallowing twitches twitching voice weakness worried
    • Replies: 7
    • Forum: Could this be ALS?
  7. Bestfriends14

    A question for PALS

    Hello, My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...
    • Bestfriends14
    • Thread
    • advice afo arm back bed cals clinical clinical trial depressed exhaustion fell foot natural night nutrition pals progression respiratory scooter supplements test trial vacation wanted wheelchair
    • Replies: 16
    • Forum: General discussion about ALS/MND
  8. W

    Symptoms? FALS

    Let me start by saying I really hope you all tell me it's all in my head. I've read the sticky thread but I'm still unsure, so please bear with me while I ask for experienced opinions. A little background. A couple years before I was born (I'm 34 now), my paternal Grandmother and uncle (her...
    • whoviantrekwarsgirl
    • Thread
    • ability als book confused cramping diagnosis early fals family family history father fingers genetic hope muscle muscle twitching night pain respiratory scared shaking sod1 symptoms twitching wrong
    • Replies: 6
    • Forum: Could this be ALS?
  9. T

    Could I have respiratory onset als?

    Hi everyone my name is jake and I’m 28 years old. My symptoms started over 2 years ago with random twitching and mild breathing issues. This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction. I then saw a...
    • Tucker753
    • Thread
    • als als? breathing breathing issues emg food hope muscles onset respiratory respiratory onset swallowing symptoms symptoms? twitching work
    • Replies: 21
    • Forum: Could this be ALS?
  10. C

    Respiratory Onset- Update

    Thought I would give status on my husband for those few with this ALS type. After 10 months of tests, his final diagnosis was July 2017. He is weakening and hasn’t left house for several months. Just better since breathing is very tough. He is on trilogy 18 hours a day. A blessing that...
    • Chrismarie
    • Thread
    • als anxiety breathing bulbar clinic diagnosis hospice hours morphine nose onset pain respiratory respiratory onset symptoms tests trilogy update walker weakness
    • Replies: 2
    • Forum: General discussion about ALS/MND
Back
Top