research

  1. HopeNPrayer

    Probable Diagnosis

    Hello all, I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
    • HopeNPrayer
    • Thread
    • 2nd opinion advice age atrophy back brain denial diagnosis emg falling foot foot drop grief hip insurance lead life lyme mnd muscle research stress symptoms weakness wes
    • Replies: 8
    • Forum: Could this be ALS?
  2. S

    I'm Hoping to help veterans with ALS

    My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
    • Sonofagun
    • Thread
    • als dad death disability electric wheelchair family grant immediately info insurance legacy life life insurance manual military pain questions relative research second opinion va benefits van veteran veterans wheelchair work
    • Replies: 14
    • Forum: Military veterans and the VA
  3. G

    Newly diagnosed

    I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
    • Grhbr
    • Thread
    • advice als book breathing caregiver clinic diagnose diagnosed fatigue feeding female hospice neurologist newly diagnosed problems research support swallowing symptoms symptoms of als tests travel treatment voice walker
    • Replies: 21
    • Forum: Newly diagnosed
  4. M

    Trouble getting a neurologist referal

    Hello all, Let me tell you my whole story... I started having pain(muscle ache) in my shoulder March first. Went to a redicare Dr on March 11th and let the Dr know the muscle pain is also in my arm as well as shoulder and moving around. Was told this was myalagia and to follow up with primary...
    • Myrtle
    • Thread
    • arm back enzymes falling fatigue free hope insurance muscle neurologist night pain research scared shoulder story stress swallowing swallowing issues symptoms test tests twitching wanted weakness wrong
    • Replies: 24
    • Forum: Could this be ALS?
  5. H

    Confused and scared - any guidance much appreciated

    Hello all, I first want to extend my sincere appreciation for the support offered on this forum. I don’t think I could show the bravery, class, and kindness that many of you display so well in the face of adversity. Please know that I am so grateful simply for the opportunity to express my...
    • HL93
    • Thread
    • age als anxiety awareness back clinical confused muscle muscle twitching neurologist pressure research scared stress support symptoms twitches twitching weakness work worries
    • Replies: 8
    • Forum: Could this be ALS?
  6. T

    Question about end game planning

    Hi, this is probably the wrong place to post this, but I don't know where to put it and am comfortable in the vets threads. :) I am working on estate planning, not because I am in my end game, but because everyone should, incase they are hit by a bus. I apologize that this is a sensitive...
  7. A

    Hypoflexia? Is this what I am expiriencing?

    Hello everyone, I just want to start off by saying that I know only a doctor can diagnose me with anything. I have also read the stickies and have a few questions about hypoflexia. I realize no one can diagnosis me with anything but a doctor. Like, what is it exactly and how is it diagnosed? And...
    • Ash Done
    • Thread
    • als anxiety arm back brain breakdown clinical diagnose diagnosed diagnosis female health hypoflexia mri muscle muscle weakness neurologist please help questions research symptom symptoms symptoms? test twitching vitamin d weakness work
    • Replies: 9
    • Forum: Could this be ALS?
  8. bkite

    Paraprosdokians

    Have you ever heard of Paraprosdokians? First time I heard about paraprosdokians, I liked them. Paraprosdokians are figures of speech in which the latter part of a sentence or phrase is surprising or unexpected and is frequently humorous. (Winston Churchill loved them). 1. Where there's a...
  9. A

    16 years on from diagnosis

    Hi folks, (I hope it's appropriate to post this here - my apologies if not - I'm new to the site and I thought this might just help someone...) I was diagnosed 16 years ago. In 2002 I was having falls and finding it awkward to place my feet but I never saw the diagnosis coming. I was just...
    • aitchsee
    • Thread
    • age als book diagnosed diagnosis healing health heart hope life love medicine power reading research support work
    • Replies: 3
    • Forum: Stories of hope
  10. A

    Group meditation

    Hi everyone, I'm new to the forum but have had ALS / MND for 16 years. I'm interested in creating a meditation group online using Zoom or Skype for those who are unable to leave the house without great difficulty but who would like to meditate with other people. There would be no need to speak...
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