research

my hoyer lift stopped with me in the highest point. We had not bothered to find the Manuel override. It was not obvious and took research to figure out as the company is out of business and no online manual could be found . it was torture to get me down, but would have been unnecessary if we...

To anyone my age worrying, I want to re-assure you trust these experts and stop worrying. If you look through my posts, I was in a absolute panic about ALS. I now know I 100% do not have ALS. I am embrassed I was in such a panic mode about this, and troubled the brave caring souls here. To...

This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...

Dear friends, My story so far was an impressive story of fight for survival. 5 years ago I had a severe adverse reaction to an antidepressant and became bedridden and in extreme suicidal agony for 4 long years. My research was too incredible and extense to condense in a thick collection of...

I found this article helpful to me. For CALS, dealing with cognitive and behavioural changes is so very difficult, especially as the PALS does not recognise that changes are happening. To see research is revealing the incidence of changes is far higher than we were being told 10 and even just...

Dear all, Sorry for the mistakes, I'm French. Sorry for the lenght (also going to blame it on the french origin ^^) First of all, i want to express all my love to those suffering with ALS. I know how frustrating it can be for someone who has got diagnosed to see ‘healthy’ people not fully...

For the past month I've had Fasculations that started in my lips which didin't scare me just concerned me. Then I started getting fasculations in both my calves which last 24/7 It's like someone is playing a piano on my calves. at this point I started to google and it said BFS or ALS. So For...

Hi my name is Daniel, I dont know if I have ALS but reading your posts / threads have helped me significantly on processing everything that has been happening to me in the last month and reading about your strength and sometimes humour during adversity only gives me strength whatever my future...

Looks like we are denied access to most published papers. Since it seems that a number of these papers are the result of grants from the ALS Association/Foundation I think those of us with ALS should have free access and not be required to pay the exorbitant prices to get a research paper.

Hi all, I'm wondering if anyone here has used mullein leaf tincture (or any other variants of mullein) to manage secretions and general lung health. If you have, what effects did it have for you? My partner Jen is a PALS with a trach and has thick secretions (even when she's sufficiently...