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Thank you all in advance for your time in reading this. I will do my best to keep it as brief as possible. I have read the sticky. I’m 29, stay at home mom of three kids, three and under. About 6 months ago, I noticed some neck stiffness, along with transient pins and needles and numbness...

Hi.. This is not my first time here but I had hoped I wouldn’t be back but I am so I will post what is happening now. So in 2017 because of some leg twitching I went to neuro and had clinical exam and 2 different emgs that all came back fine/normal. I should also state that I do have health...

hi all I just found out that reading the closed thread “ I know it’s silly but “ helps us understand how pals may feel and get to know the path of people on the forum. It is both sad and soothing. Sad you guess why. Soothing because what we guessed is expressed clearly with love Really...

My first neurologist diagnosed me with HIV Associated Vacuolar Myelopathy and didn't think I had ALS (less than a year ago). The second neurologist concurred and all the extensive testing was normal. My I.D. doctor thought I had ALS and just recently I went to a neurosurgeon to find out what...

Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...

Hi all, I just wanted to share a recent journey about my ALS scare and how the best thing to do is seek out a medical professional right away if your concerned. I feel like my story will resonate with others here lurking on this forum. Unfortunately, a 40-something neighbor of mine was...

Hello First I want to say I am so sorry for the affects this disease has caused on peoples lives. I have neurologist appointment but I am about a month and half away from it. I have some symptoms that I would like to run by to see if I can rule out ALS So I didn't really notice anything...

Hi Guys, my ALS has been very slow and even static for a period of over a year. But in my recent tests, early neurodegenerative changes have shown up all over my body. I guess I'm trying to figure out if I'll start collapsing all together or I'll experience periods of deterioration in various...

Hello all. Just wanted to thank anyone for taking the time to read to and/or respond to my post. In June, 4 months ago, my shoulder started to hurt. I had to quit my job because of the pain. I was diagnosed with shoulder impingement, and got several cortisone shots, attended physical therapy...

Sorry to be so blunt, but I need help finding a toilet paper assistant device. My hands won't grasp well enough to clean myself. In reading past posts, I found almost everyone reccommending a bidet which is not going to happen at our current home but maybe in our new one later. Until then...