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  1. T

    Never wanted to do this.

    Hello, first I just want to say thank you for reading this and for those who are affected with “A” y’all are brave souls and I pray for y’all. I didn’t wanna post on here because I felt like i didn’t need to but I feel like I’m losing my life. I’ve recently lost my job, almost my relationship...
  2. A

    Controversial neuro exam

    Thank you in advance for reading my post and apologies if some of my questions are not consistent with the sticky notes. I am 27, male. For the past four months I have perceived weakness and feeling of numbness in left arm and leg which tend to come and go. The numbness is usually more...
  3. C

    Abnormal EMG/Twitching- Any hope?

    Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...
  4. S

    Looking for positivity.

    Hello all. I am here because i have been getting few answers or maybe I git the one i needed but my anxiety wont accept it. I have been having fasciculations which started in my calves, 2 weeks ago now i get them basically anywhere at anytime. I also have lost a couple lbs but that could be...
  5. S

    Really Worried

    Hello everyone, First of all I want to say that I really appreciate your help. My name is Sina, I am 26 years old, male. About a month ago, I started noticing weakness (not clinical) in my left leg. It really didn't bother me much until a week later I started getting twitches all over my body...
  6. L

    Flying free soon

    My husband who has ALS/FTD will be flying free soon and going home to be with his Lord and Savior, Jesus Christ. He was diagnosed in May of last year. He has pneumonia and his lungs are completely full. It happened in a matter of hours. He’s resting comfortably now but had a rough day...
  7. M

    Thoughts?

    My name is Amanda and I am 38. I have had some issues going on and would like your feedback. 1st, I noticed weakness a couple years ago. I went to get milk out of the fridge and noticed a weakness in 1 arm. I had also noticed twitching and started having panic attacks shortly after, which I...
  8. ReginaS

    9 months past diagnosis

    Hi all, My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot. He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...
  9. S

    Hi! Back again- scared more

    I posted in september regarding body wide twitches and thumb pain. Now i still have twitches, big one, small one, ones inside my ears. But my thumb pain has returned.(its more of a stinging sharp pain, that also appears when I exhale.) I am scared. I am seeing PCP tomorrow. I am afraid he would...
  10. J

    Confused, looking for clarity and perspective

    Hello everyone, I Am brand new to this forum but I would like to take a minute to say thank you all so much for what you are doing to provide support for PALS, CALS and people like myself who are seeking knowledge and peace of mind. I cannot say that I understand all that you're going through...
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