questions

  1. O

    Covid vaccination and low dose naltrexone questions

    My PC is an antivaxxer and recommends against getting any additional covid vaccinations. I've had the first three and plan to get a 4th this fall. Has anyone had adverse reactions to the covid vaccine, other than the usual slightly sore arm? My son and I both had covid a year ago; he is not...
  2. M

    BiPap questions

    My BiPap was delivered today. I want to breathe slower than the machine wants me to. Inhaling and exhaling get difficult toward the end. Can one get a longer hose? The space between my side of the bed and the wall is narrow-ish and this means that with the nightstand and then the BiPap, I...
  3. M

    PEG procedure questions

    I called to schedule my PEG today. They said they want to do the CT themselves (90 min drive each way). Then they want to have me open my mouth and say Aahh so they can see how open my airway is (or isn't), and based on what they see they will score me (mallampati), and that plus my "history"...
  4. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
  5. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  6. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
  7. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
  8. K

    ALS symptoms?

    Hi all, I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun. I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
  9. N

    Could this be ALS?

    Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at— 1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
  10. ShiftKicker

    For Canadians interested in Radicava

    The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...
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