questions

Since Medicare open enrollment is happening through December 7, just a quick note on some 2019 changes that could affect your decisions. It is always worth looking at what you have vs. the competition every year. Not all counties have MA plans available if you are <65 or at all, but many do...

I read about Requip and it seemed like a good gamble so I got my PCP to write me a script for it. I really wanted to get Ibudilast. I am not a chemist, but it seems that Requip (C16H24N2O) and would also act similar to ibudilast (C14H18N2O). What opinions does anyone have?

Good morning. 32 years old with two young children and pregnant with my third. Undergoing testing for a neurological issue, with ALS as one clinical possibility although I have no been formally or even informally diagnosed yet. I have life insurance through my employer but no private policy. I...

Hello everyone I have some questions and a info about my symptoms. I started having fasicutaltions all over my body about a month ago, three weeks after a gum infection i took amoxicillin for. Didnt pay much attention to them it at all. They have not gone away so I've started to worry about...

Hello everyone. I will try to explain what I have been going thru and any advice would be appreciated. I’m a 38 year old male. I started having dizziness in December 2017. I then had some left sided facial tingling around January 2018. For this my doctor ordered a Mri of brain and...

Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...

I know I’m sure I am over reacting. And I don’t want to waste anyone’s time. I won’t continue to post here if everyone agrees this isn’t what I’m dealing with. Every now and then I will randomly feel a dull ache sometimes in my shins and calf muscle and will travel up to my upper legs and...

After nearly 4 months of tests and 2 EMGs I have been diagnosed with ALS. Looking back a few years I can see small changes in health that progressed to this diagnoses. Next month I will be 77. I am going to my first visit at an ALS Clinic (Indianapolis) on Tuesday and am preparing a list of...

Hello All, First of I would like to say thank you for opening this forum to people like myself that dont know whats going on with us and are scared sh-less. I think its great that your open to helping both people with ALS and those that are not yet diagnosed or that are just suffering from...

I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far). That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html I did receive a gift of a...