Hello -
I have been experiencing neurological symptoms since around January. It started out very sensory in nature but over time, there have been some issues with my left hand/arm that have created some other concerns. Let me state the following because I am looking for insight as to what my...
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Hello all,
First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts.
I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...
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Hello,
I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...
Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago.
During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
Going through hard period with my father’s progression speeding up. I arrive at his place late at night loaded with bags for a stay with him. Jeff, the bar tender stops me and says “ I don’t know you but I see you. How are you ?*» I say he is so so. He insists «* how are YOU*»
Then he says if...
Although we had a probable diagnosis a few weeks ago we were waiting to get into our ALS clinic for an official diagnosis from them. It still came as a big blow for my father and our family even though we were expecting it.
My question is his ALS functional scale rating was 46. Is that...
Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment.
Thankfully -we have great medical insurance at this time- so finances aren't the...
Hello to everyone, this is my first post, after spending a lot of time browsing the forums. It seems like a very supportive place.
I've noticed in these groups as well as in the local ALSA support group we go to, that some people are dealing with the stress and demands of a fairly rapid...
I need some advice. My husband was diagnosed in January and fortunately has slow progression with the thought it may be flail leg.
Today with temperatures in the high 90's, he decided to golf with friends and passed out. He was transported to the er with facial lacerations which required...