problems

  1. N

    Does this sound like bulbar onset?

    Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...
  2. K

    Trouble with Sentry 1400 Low Air Loss/ Alternating Air Mattress

    Hi all, hoping someone can help with our problems with the alternating air mattress. Just had this delivered from the ALS closet on Thursday. First two nights, she finally slept till 5am, instead of 2am. That was good. Last night she slept badly. But the rest of it is a disaster. She is so...
  3. K

    My Husbands Worried.

    Hi all, thank you for allowing me to join and be able to post here. I've been on this website a lot since October 2017 and I'll explain why. My husband, who is 31 years old began getting some twitching in his muscles in or around October 2017. He went to his GP for around two visits before the...
  4. A

    Back after 5 years... still worried

    In 2012 fasciculations started. I also have pin and needles and some other little things. Went to the neurologist, he did some tests and diagnosed me with BFS. Slowly my worries disappeared and I went on with my live. I'm 42 years old now and a mum of 4 kids. But... since 2014 I got some...
  5. D

    My dad's progessive weakness - concerning?

    Hi all, I'm a 25 year old male from Detroit and my dad is 53 years old. This post is about my dad. Background info: my dad has plenty of other health problems that make weightlifting harder for him, including arthritis in his knees, a bone spur in his back which causes a lot of pain and some...
  6. T

    So much air!

    My Dad got his tube in early December. We've tried both gravity and now pump feeding. He is just not comfortable. He can't get down more than 3 cans a day without being miserable. We've tried the first 1.5 calorie formula, a higher 2.0 calorie formula, and a 1.5 with lower fiber. We are...
  7. Doglady

    Limb onset question

    Hello all! It's certainly great to be a part of this group of experts - and I do appreciate all the helpful advice I've received and read in past messages on various topics. The knowledge and wisdom here is awesome and I've learned a lot! So, where else would I go when I can't figure...
  8. G

    Twitching Hotspot and Muscle wasting

    Hey Guys first of all i wanna say thank you for this great community and a happy new Year . I´m from Germany so - sorry for my "bad" english. i´m 29 years old engaged and i have a lovely little boy and a wonderful Wife. Active in sports like Karate and some Fitness. 1 Year ago it started...
  9. C

    Digestive issues help-baclofen

    Over 2 years into this disease, and one of my husband’s big problems has been abdominal cramping, bloating, diarrhea, constipation- you name it. Hospice has recommended everything you can name. Not much helped. Each day in mid-afternoon, he would get abdominal cramps and just feel awful. He...
  10. S

    Still have concerns

    Hi, I apologize for being back but the drs. can’t get to the root of my issues and keep telling me to go back to the neurologist. The Neuros keep saying come back in 6 months. My last visit drs thought I had celiac but now it turns out that was not the issue. Couple of questions if you don’t...
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