pressure

  1. B

    Glaucoma

    Strangely, I developed low-tension glaucoma in one of my eyes back in 2014. Subsequently, I was diagnosed with ALS on Sept. 1 of this year. Is there some speculation or fact that low tension (low pressure) glaucoma is a early indicator of ALS?
  2. O

    Need Advice: Spinal Tap Useful?

    Is a spinal tap often recommended to help confirm ALS (i.e., rule out other possibilities)? Does anyone have any resources regarding the use of spinal taps to successfully dx or rule out ALS? I am trying to find info to help my PALS make a decision about getting a spinal tap. Very quick...
  3. H

    The strife is o'er, the battle is won

    My beautiful sister died very unexpectedly of complications of ALS in the middle of the night last night. She had just been in the hospital for replacement of her feeding tube, and the Hospice nurse had examined her a few days ago, and no red flags were raised except for the fact that her blood...
  4. R

    Neuro Today. Asymmetric Knee Reflex.

    I'm a 25 year old male. I've been having fasciculations all over my body daily for a little over three months now. (literally everywhere from head to two, including inside my ears etc) I saw a neuro today. He didn't seem concerned about the twitches overall due to their widespread and fairly...
  5. S

    Is it ALS?

    Okay so I would like to start by stating that I am asking this for my mother who is 48 years old. Please excuse my grammatical errors as english is not my first language. It all started with TIA like symptoms. One day..out of nowhere my mother suddenly felt her left hand go numb...
  6. C

    The Importance of Self Care

    When taking care of our PALS we often put ourselves on the back burner. I am horribly guilty of this. I have been running non-stop since February of this year. My dads progression is quick so I am constantly trying to catch up..... This is until this last week. I came down with a major...
  7. 4tloml

    Heart Rate/Blood Pressure Question

    Has anyone experienced widely fluctuating heart rates and blood pressure even as O2 readings remain stable? Do you know what it may indicate (if anything)? My PALS's heart rate jumps around from the 50s to the 120s and seems inconsistent with fluctuating blood pressure. (Sometimes BP readings...
  8. M

    PressureGuard APM2 Mattress For Sale

    Lateral Rotation and Alternating Pressure mattress, with electronic control. Make an offer!
  9. N

    My Dad has progressive bulbar Palsy

    Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...
  10. NothingButLove

    In about 6 hours, my wife will have a feeding tube

    In about 6 hours, my wife will have a RIG placed at UCI's radiology suite. What a crazy two months. It all started on August 1st. Here's a brief run down: FVC down to 44% from 87% four months earlier. Doctor prescribes Trilogy. (Thank you Laurie for the settings!) Wife takes vacation with her...
Back
Top