power

My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around. At first he would only need...

The post in general forum about eye lid surgery frightened me. I was under the impression that all or vast majority of pals can use eye gaze communication indefinitely despite body becoming fully paralyzed. At this stage in my disease my feelings are that I want to continue to live for as long...

I would tell all veterans that deal with the VA and have been diagnosed with ALS to do the following. 1. Get with the Paralyzed Veterans Association (PVA). Let the PVA fight the VA for you. When I was diagnosed with ALS at the Mayo Clinic in Jacksonville, FL the ALS Association...

*Ephesians 6:18 And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the LORD's people. *Psalm 55:17 ESV Evening and morning and at noon I utter my complaint and moan, and he hears my voice. *2 Timothy...

for some (un)known reasons, i'm obsessed by hunger. i change my diet (less bread, sweet, less food intake etc.). i hardly walk, maybe 2000-3000 steps/day, so i dont waste energy, but hunger drives me crazy. i'm surrounded by the food i dont use anymore (cakes, sandwiches, beverages, sweets...)...

hello, many people tried many things to slow down als. i wonder - did anybody triy detoxication with green ventilated clay for oral use through 3 weeks? i'm on rilutek for one month (started on july 1st) and i obviously have to pause it, cause clay (hidratized alumosilicate) and rilutek goes...

Receiving confirmation of ALS creates feelings of shock, fear (or terror) and great sadness. It's like standing in a dim hallway staring into a pitch black room. We need to enter, but fearing the anticipated, unknown potential dangers lurking inside, keeps us rooted in place. The longer we...

My father was diagnosed with an ALS or a very similar condition. He was treated in a third world country, which cannot pride itself with very advanced diagnostics, so I thought that it would be worth to ask for a second opinion online. I'll try to be very concise. 60 year old, male, 80kg...

(I questioned whether to post this or not. Some may take it wrong but it may bring some conversation to this sub-forum. And… I’m not sure what sub-forum it belongs. Mods… move it if need be.) This is about decisions many of us face. First, I no seek of sympathy, Ann and I have been very...

ABOUT: I am selling a speech generating device with the world's #1 eye tracker used by my father. Bought Q4 2016, it was used for 2 months, it is mint condition, good as new with very practical stand and wireless keyboard included. Price negotiable, worldwide shipping. PRICE: Everything for...