pls

  1. B

    New Member

    Hello. I’m a leg gal (i.e lower limb onset). I was diagnosed a year ago, but the first symptom was more than four years ago, when, after a fall, my swollen ankle didn’t heal right. Turned out to be a drop foot. I went from walking with a cane, to getting a brace, a walker and finally a...
    • bhg
    • Thread
    • age als ankle arm clinic diagnosed diagnosis early emg foot information life new member onset pls power power chair symptom tests transfer walker wheelchair
    • Replies: 14
    • Forum: People with ALS (PALS)
  2. L

    I have muscle atrophy but other symptoms, too. Pls help :(

    Hello I am new here and per many other threads I've seen would consider myself a "guest," since I have not received a diagnosis yet. I first want to say I am not here hoping to receive a diagnosis from anyone. I understand that only a doctor can do that with proper tests - and I am seeing...
    • LoveLife
    • Thread
    • arm atrophy burning cramping diagnosis drugs early eye fasciculations fatigue female frustrated lead muscle muscle twitching pain pls sleep symptoms tests tremor twitching vision weakness wrong
    • Replies: 2
    • Forum: Could this be ALS?
  3. H

    Update

    So first I want to thank everyone for your time and effort in trying to help with my issues over the last 4 years. I have been back to USF and UF but still no answers other than they don't believe it's ALS but PLS is not ruled out based on my reflexes. Plus they have said that I have been...
    • help1127
    • Thread
    • als back chronic denervation denervation diagnosis emg hip pain pls progression tests update weakness work wrong
    • Replies: 12
    • Forum: Could this be ALS?
  4. C

    1st Symptoms of Bulbar Pls help :(

    I am a caregiver to a 75 year old woman. I've been caring for her for 5 months now so I'm fairly new BUT she is rapidly deteriorating. When I 1st started she had some problems choking but now I puree all of her food for the last month ... this is the info the family has provided and what I've...
    • Caring for Jean
    • Thread
    • age als als? balance bulbar bulbar als caregiver choking diagnosed family food info mri neurologist pls pneumonia problems speech symptoms therapy tongue voice
    • Replies: 4
    • Forum: Could this be ALS?
  5. F

    Pls

    I have PLS. Was diagnosed in 95. I'm confined to a wheelchair, I spent 3 years in the Army and I thank God I did. They are taking care of me now. They bought my wheelchair, a van with automatic doors and ramp. my wife has a full time job taking care of me. She is a Godsend. I have a lift to put...
  6. A

    PLS and ALS

    Hello, I just received my ALS diagnosis from the Mayo but the wording is a bit confusing. Diagnosis: Given and that she has subtle lower motor neuron involvement she meets el Escorial criteria for clinically possible ALS, but her phenotype is more consistent with PLS. At this time I hope that...
  7. A

    Finally have an answer

    Hello all, I received my second opinion at the Mayo Clinic this week and it is technically ALS. My neurologist was sure it was PLS due to the slow progress but my EMG showed a very small amount of lower motor damage. It is confusing but here is my diagnosis: "Diagnosis: Given and that she has...
    • andirai
    • Thread
    • als clinic confusing diagnosis emg hope life neurologist pls possible als progression second opinion slow progression
    • Replies: 7
    • Forum: Newly diagnosed
  8. BlsdMama

    Glycine Receptor Antibody?

    Has anyone else been tested for this? I was dx'd by the U of Iowa Neurology around April/May-ish officially with PLS, moved to ALS Clinic. Asked for a second opinion in June. Was seen by Mayo in Rochester in July. The PLS diagnosis was affirmed. I was tested for Stiff Person Syndrome (GAD...
  9. kevinw

    What Happened Here?

    I know I am 100% guilty here also for not posting a lot, but what the heck happened to everyone discussing PLS? When I joined this forum in April of 2008 it was the place to be. I remember refreshing the PLS page every hour and there were new comments or topics. Now the last post was from 07/02...
  10. N

    35 and angry

    I was first diagnosed with ALS. But recently i was diagnosed with PLS. And im happier with that diagnosis if i have to have one but im 35. My upper body seems to failing no one understands and no one wants to talk about it I'm want to go to work I want to be able to volunteer in my children's...
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