Wow, each neurologist has a different answer! During my first 3 and a half years, several neurologists said probable PLS. When I was sent to Clinic, that neurologist described it as a “slow progressing variant of ALS.” He didn’t like the term PLS, saying that all fell under ALS.
Now a year...
I’ve been reading a lot of Threads and posts concerning Primary Lateral Sclerosis.
And… this sub-Forum has been relatively quiet. Not to cause a stir but maybe create some discussion.
If you have a confirmed or possible diagnosis of PLS and you are having fasciculation they are real but…...
This post is specific to those diagnosed with probable or definite PLS.
I recently had yet another ALS clinic appointment. The neuro had a resident with them, so my exam was both longer and more thorough than usual- and conducted with running commentary for teaching purposes. I received my...
Hi there. I am a new caregiver to a young man with PLS. Just here to educate myself and learn how best to help him. He says he doesn't want pity but my heart breaks for him. I don't pity him....I just have grown to care about him. As a caregiver is this normal? I know it's a job but I feel...
Please join us for something new Feb 13-14, 2018!
https://www.morethanourstories.org
Last February three of us did our own mini ALS advocacy day. We had some issues that were very important to us and wanted to get in front of the government appropriations process (which is already iced by the...
I was diagnosed Wed before Thanksgiving 2017!
I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...
advice
age
back
balance
bed
brain
chair
diagnosis
falling
fals
father
healing
lift
neurologist
newly diagnosed
pls
pressure
radicava
ramp
riluzole
sleep
social security
surgery
symptoms
walker
wheelchair
I have a working diagnosis of PLS. I’m aware of the statistics. So far two clean EMGs.
Had a Neurology appointment at my research hospital, not Mayo. Mayo has dx’d PLS as well but because a glycine receptor antibody was found a trial of IVIG for Stiff Persons was ordered. I’m about seven...
Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron
disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or
Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease
and meet the requirements listed below, you...
advocacy
age
als
atrophy
clinical
clinical trial
communication
cramps
diagnosed
diagnosis
drugs
health
information
life
muscle
pls
pma
questions
support
trial
volunteers
work
Hiya guys,
New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts.
I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here.
So the very short version of a very long story.... i...
Hello I am mid 40s yo male with a background in the medical field. I would like to ask anyone if their symptoms started like mine and any recourse I would have pending.
4 months ago my legs started be tired and heavy proximal but wide fluctuations. I am a very anxious person and als fears came...
acetylcholine
als
anxiety
brain
bulbar
clean emg
clinic
dysphagia
eating
family
fasciculations
food
hope
life
lyme
medical
mri
muscle
night
normal emg
pls
questions
speech
symptoms
testing
tongue