pls

Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...

Hello everyone, After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...

Age: Turning 22 Height: 5'11" Weight: 147lb, lost 23lb in last 3 months but not entirely sure why, could be just eating less or something less, not sure Gender: Male Medications: No Smoking/Drinking: No Pervious illness: None really, I never got sick other than the "common cold" Duration...

Is it the longer one is improving in affected limbs the less likely pls/als? Can plateaus last years?* I had a thread for my dad but it's closed now.* He doesn't want to go for more testing since nmd doesn't have treatment. He got the possible pls and that was enough. I'm the one digging...

Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...

Hello, After two years and a half of symptoms, my father has been diagnosed with PLS. We are still quite astonished and it is hard to stomach the truth. Given that the EMG was clean, the doctor thought that this was the most likely cause for my dad's symptoms. We are starting treatment next...

PLS or ALS? This is my first post. I'm 55 years old. I read many posts on here and see that everyone is very helpful. In 1915, I was lying down in bed and felt 4/5 electrical shock type sensations in my right thigh. The last one was the strongest and even painful. They occurred in the...

Thank you so much tracyliz, Your detail is very much appreciated. As someone who is just at the start of this journey I'm just trying to get a handle on what the future will look like. I know my progression is still in its infancy and I'm yet to be definitively diagnosed. I've had 2 CTs, 2...

Hello, This is my first time posting and I've only been poking around for a week as it was a week ago that my Neurologist said he thinks I may have PLS. I've only had my symptoms for a year and I know that it can take many more for a definitive diagnosis. With that being said, I'm wondering what...

I'm new here and just got the devastating news that my dad may have pls. He had brain and cervical spine mris, nerve conduction test, and emg. Neurologist is guessing pls as nothing else makes sense. He's referring my dad to another neurologist at uc irvine, dr. Mozzafar who has the equipment to...