pls

Hello everyone, Lately, my father has been having short episodes of dizziness and vertigo. He literally says that his head "goes away." Today he was shaving, standing alone, in front of the mirror, and almost fell because he got dizzy. The weird thing is that he can walk for a mile with a cane...

Hello, and Merry Christmas! I am writing to ask you a question about the daily chores. My father has retired about a year ago and has been suffering from PLS for 3 years. Since then, he spends most mornings doing chores: aside from showering himself and getting dressed, he cooks for the family...

Hello beautiful souls, Since symptoms began, my father has been steadily gaining weight, especially over the last few months as spasticity worsened. He tries to stay active by going to physical therapy three times a week and by pedaling at home in the electric bike, but he has gained at least...

Hello, I am writing to you to ask for help understanding the last report from my father's neurologist. He is 60 year-old men who was previously diagnosed with PLS (three years of symptoms). I am interested in knowing if the new report suggests to you that the diagnosis might change to ALS. I...

Hello, I was not sure whether to make a new post or to post on a previous one on teens, but I think that living away changes the experience quite a lot so I figured it would be helpful to open a new thread. As some of you know, my father was diagnosed with PLS. I am from Spain, where he still...

Info on the Phase II trial here. It is on the market already in the UK for MS spasticity. The manufacturer, GW Pharmaceuticals, is negotiating with the FDA toward a US approval, having recently obtained approval for a CBD oral solution for certain forms of epilepsy.

Hi everyone, This is my second time posting. First time I had not been checked by a neuromuscular illness doctor yet. Meanwhile I got checked and this doctor identified the following symptoms with 1 year progression since onset: ✓ Generalized Hyperreflexia ✓ Generalized stiffness in 4 limbs ✓...

Dears, I am looking Tobii eye gaze dynavox for my 5 years old daughter, she has brain trauma and Tobii would be great for communication. But we do not leave in USA and insurance doesn't cover it. If you have one for sale pls contact me. All the best Maria.

My father has started taking Riluzole for PLS. He has noticed increased weakness (for instance, he used to be able to stand up easily and now he has a lot of trouble standing alone from the couch). Is this normal? Do you think it might be a result of the disease? It started quite abruptly since...

Hello, I want to share with you our story in full. There are bits and pieces all over the forum, but I wanted to gather everything together. My father received a final diagnosis of MND yesterday. My father (60) started experiencing symptoms quite a while ago, around the winter of 2016. He...