peg

  1. L

    PEG tube cleaning

    Any hints about using a Bard PEG tube cleaning brush? I bought a few to try. I didn't feel comfortable using a pipe cleaner on my wife's PEG.
  2. L

    Hectic 5 weeks - followup

    While I haven't posted recently, I have followed many of the threads. All of the posts are so beneficial and at the same time overwhelming. Anyway after another 8 weeks, I'd like to give an update on our situation. The summer heat and my slow healing foot has kept me from overworking and...
  3. S

    Doctor assisted suicide

    My dad keeps saying he doesnt want to wake up. He hates that he cant do anytjing but is refusing almost all interventions (peg, walker, scooter, wheelchair, etc... he does have a bipap and cough assist but only uses it about 5 hours at night instead of most of the day as per dr). We keep trying...
  4. J

    Last chance to participate...

    Greetings All, I am conducting research into Psychological Flexibility in people with ALS and if it is associated with attitudes towards PEGs and Non-Invasive Ventilation. Participation involves doing an online survey that takes around 15 minutes. This will be your last chance to participate as...
  5. A

    How to ease into Using PEG

    Got tube 9wk ago and ready to start using for nutrition Still eating by mouth, but I seem to be losing weight for the first time Don't want to disrupt intestinal tract which has been functioning pretty well I'm a little afraid of the 1.2 jevity , so started with 1 can. Do we just keep adding...
  6. NothingButLove

    Help me please! I need serious advice!

    My wife’s doctor doesn’t want to place a PEG tube. Today the doctor told me I might want to get hospice involved. I’m fully wrecked crying my heart out. Here’s how things happened… My wife started showing symptoms 1/16 and was diagnosed 11/16. She lost both her legs 3/17. Things seemed to slow...
  7. L

    Gravity feeding bags

    My wife just got her PEG on Wednesday. Doctor wants her to start with Fibersource HN, 4 cans a day. Still waiting on delivery of the formula, hopefully it gets here early next week as we have a trip planned at the end of the week. I'm not sure if feeding bags are included, I will find out on...
  8. S

    A few concerning symptoms. Just anxiety?

    I have been reluctant to post anything here (have been reading for a while) because i felt that it would just fuel my anxiety, but now I feel like it may be beneficial. I realize that I may just be suffering from medical anxiety, however, i do have a few symptoms that i know are not just in my...
  9. C

    PEG Tube question

    I had a peg tube placed one month ago. I've dealt with an infection and pain that lasted for three weeks. For now I'm not using the peg except for flushing with water twice daily. My question is.. have any of you felt the cool water in your throat when flushing/feeding. Thank you, CarolSue
  10. T

    MIC-KEY clogs

    Anyone with a MIC-KEY find the valve gets clogged? I'll do a feeding and have to plunge the first bit, then it flows normally. After, I rinse everything out with hot water. Next time I feed, same situation. Is there some additional bit of care I need for the valve?
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