At our latest clinic visit we were advised that it was time for yet even more equipment than we were prepared to hear. Time for hospital bed, special mattress, dynavox for speech and change in PEG formula. This has left me with little time to research therefore I am asking those who have been...
I have PEG installed 6 weeks ago and haven't needed yet(except to flush)
I hate having the 12-18 inch tube hanging out. How hard to change it to a button?
For the second time, I have received a drug sent in a capsule when I can only take drugs through the PEG. This one is for Neudexta. My husband called the mail order pharmacy and after 30 minutes on the phone he was told that Neudexta only comes in a capsule and that I should contact my doctor...
Just got out of the hospital after a PEG was put in. Going through forums to see what to expect. You all are talking about all different kinds with buttons, mic, etc. I have no idea what I have! Have no instructions other than to feed 375 mil three times a day. My husband had to go down and...
Ended up in the ER here in San Francisco for about four hours yesterday for severe dehydration. Ran an IV to rehydrate me, did some basic RT tests. They wanted to keep me and out in an emergency PEG today. After consulting with everyone, decided to have me keep the scheduled appointment today...
Hi all,
I'm really, really sorry for posting again - my old thread got locked automatically which can be accessed here - https://www.alsforums.com/forum/do-i-have-als-als/40349-another-bulbar-als-thread.html
My current symptoms all remain or getting worse since this has started 4 months ago...
age
als
arm
back
breathing
bulbar
conversation
denervation
emg
falling
fasciculations
fvc
insertion
medical
mri
muscle
neurologist
peg
saliva
shoulder
swallowing
symptoms
twitching
weakness
work
My dad has his peg placed yesterday.
He was already week and losing weight and choking so badly - for hours, every single day....
At first I was so happy and relieved.... No more choking, and hopefully he'll become stronger eventually.
And it was a miracle he decided that peg was a way to...
Peg tube installed Friday... now what?
I don't need yet, but had it installed while still ok.
Have not removed bandage yet...
What care do I need to do if I don't use for a year? (or more
(I hope)
Long time lurker and figured it was time to actually become more active with this great community and say thanks for all the amazing tips, advice, and information everyone shares here.
My partner and PALS has what seems to be a quick progression. Bulbar onset, DX Jan '17. PEG and SPCath by end...
First, I know I started several separate threads, and I wonder if that's okay. Or should I just start one and stick to it? I start a new thread with each new question, and I'm afraid I may have more questions, and more each day...
My dad's doctor recommends that he gets a trach together with...