oxygen

  1. A

    Welts on neck

    Dan has broken out in what seems to be welts on his neck. This is not an area where the tubing from his oxygen touches, no change in meds in the last couple of weeks. The welts seem to be multiplying. and now the area is about the size of a soda can top.Any thoughts? Of course I am using the old...
  2. K

    Please help asap!

    My dad has taken a turn for the worst the last couple of days. He has had so much mucus build up that he's unable to cough up. He usually suctioning and won't use the cough machine much because he believes it will make it worst. His oxygen level has been lover so hospice nurses have been wanting...
  3. D

    Hurting for our friend

    Our longtime friend was diagnosed with ALS in August 2012 (more than three years already!). Initially, they said LMD but then changed it to ALS. He had a bad fall with head injury a little over a year ago (subdural and subarachnoid bleeds). His arms and legs are virtually useless now. But he...
  4. S

    8 liters per minute of oxygen for ALS hospice care

    Anybody here ever heard of an ALS patient receiving 8 liters of oxygen in combination with Bipap but no ABG testing to properly titrate? I am doing some investigation since I believe this hospice had no idea what they were doing and my mother died prematurely due to C02 buildup leading to...
  5. M

    Not sure how to handle this

    My mother passed almost 2 months ago from ALS. I was a caregiver for her and she was hospitalized for a long time with a feeding tube and traecheostomy....she suffered tremendously. The decision to be taken off the vent was hers and we were with her when she passed....when I close my eyes I see...
  6. 4tloml

    Low Nighttime O2 Sats

    We've been checking my husband's O2 during the day but hadn't at night. He has complex sleep apnea and REM Behavior Disorder (RBD) and has been on melatonin and a "Respironics BiPAP autoSV Advanced" for around 2 years at night. He's been on the Trilogy on and off throughout the day since...
  7. Gracious99

    Raymond has passed away

    Re: Giving oxygen now My sweet Raymond lost his fight with ALS last night, July 30, 2015. He was surrounded by love; his family and friends gathered around him, I'm certain he could hear everyone as they laughed and shared stories about his crazy antics. I know he felt the love and joy and...
  8. Gracious99

    Giving oxygen now

    Raymond has had a turn for the worse, second day back and work and I got a frantic call from our son that Raymond woke up and was disoriented and confused, didn't know where he was or what was going on. I rushed home, called hospice nurse, and found that he was a little more lucid, but still...
  9. starente15

    Throat spasm (?) vs. choking

    Hi everyone. I was wondering if anyone has experienced a throat 'spasm' where they can't breath and get panicky yet are still getting oxygen (vs. actually choking on an object). My dad had a real choking incident this morning (on watered down oatmeal), then two 'spasms' throughout the day (one...
  10. G

    New ALS treatment approved in JAPAN ONLY

    Story: Radicut® Approved for ALS in Japan | ALS Therapy Development Institute What is Radicut? According tot he company, Radicut is a free radical scavenger which works to remove oxygen-containing molecules, which build up in people with ALS and other diseases. This antioxidant approach is...
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