oxygen

Hello everyone, When I first joined this amazing group of people there was so much that I just read. I grabbed on to each and every thread like it was the oxygen that I needed as a caregiver to breathe. One piece of advice was to "bank my PALS voice" I heard it and I tried (though not too...

Hi all. My PALS is experiencing severe dry mouth that does not go away during the day. He is not taking any medications to decrease secretions. He is not taking antihistamines, etc. He has become a severe mouth breather overnight, in an attempt to get more oxygen. I have purchased Biotine...

Long Term Mechanical Ventilation with Non-Invasive Ventilation I have been using this eye gaze for a few months. I have not been able to copy small pertinent sections form articles. Anybody that can, please do, and add anything that might clarify. If I am misunderstanding these papers, I am...

I have bulbar onset ALS for close to 2 years. I'm pretty much confined to a hospital bed for 22 hours per day. I find myself sleeping 12 - 14 hours per day. When i sleep, I have no problem inhaling but exhaling seems to take twice as long, and seems to be labored, although not consciously so...

Hi, I have had about 2 years of extreme fatigue, problems with executive function, and more recently weakness with fasciculations. I already have diagnosis of moderate mixed sleep apnea (first thing I was diagnosed with 2+ years ago), immune deficiency, pituitary dysfunction, "CFS" and...

Yesterday my wife and I flew from Iowa to Arcata, Ca., 3 flights including one over 4 hours. On the long flight I experienced intermittent difficulty breathing, especially when I leaned back in the seat to rest. I experienced some lightheadedness as well. Once on the ground—in fact once at lower...

While not conducted in ALS, this small study of healthy volunteers, complemented by work in some of the other dz states mentioned below, suggests that early BiPAP might help protect neurons. BDNF administration was tried and failed in ALS, but seemingly for reasons more related to the...

Last Saturday, we went to a ENT surgeon for a checkup, as we suspected mom's Trach tube has become displaced (instead of being straight, it was leaned on the left side of her throat. May be due to the vent being positioned on the left side of her bed). Along with that, Sputum like secretion can...

I know it's been said before on here that we don't really need more oxygen but to get the co2 out. Now that hospic is helping me out the nurse want me to have oxygen here at the house for emergencies when I get short of breath while lying down she to save trips to ER. I told her I didn't think...

My wife and I returned from a visit to Mayo in Rochester, MN last week. Many issues have been going on for a long time; thinking back, probably for at least a couple of years. Problems started to get bad enough to make me go start having things checked out about 8 or 9 months ago. Several...