oxygen

  1. scaredwifetx

    Steve's Peg procedure and some frustrations.

    Steve is finally sleeping for the first time today. The procedure went well with a couple of minor issues. While in surgery the doctor found some small spots on his stomach so took a biopsy. When he got into recovery he was cough in up a lot of fluid. Although I guess that could be good. The...
  2. D

    Bipap and cough machine

    Hi all. Doing well, just one more question. Dad is using his trilogy vent mask with oxygen attached and alternating with his cough machine. He does this all day long. We give him anxiety medicine and he sleeps a little then goes right back to it. It is very tiring for Dad and me. I tried giving...
  3. M

    Close to the end..

    Mom is now on morphine every 2 hours and oxygen 24/7 as prescribed by our hospice nurse. They think she has less than a week now - more like a few days.. but her body is young (she's 56) and her will to live is strong. She's trying to fight it. She is sleeping most of the day now and opens her...
  4. D

    What to do now?

    Ok. I think Dad is declining. He is barely eating anything. Maybe a few spoon fulls of soup for lunch and about the same for dinner. Has loose bowels now all the time. really short of breath. Hospice brought out oxygen last night. So now on oxygen during the day and his bipap machine at night...
  5. P

    a turn for the worse

    Everything seemed to be going okay with the PEG. Then, the day before I was supposed to fly to Niger for work for a week, then Paris for a day, then MIT for a week of training, she had a little fall. She was able to get herself up somehow, crawling to the living room and hoisting herself up with...
  6. SLAUGHTER1555

    PALS Trouble with breathing oxygen in blood good

    Hi Cals and Pals its been a while and since the diagnosis last year things have been horrible:( one thing after the other. So during all this i have hurt myself mainly my back to the point i could no longer care for my Pals i had to place him in a care facility😞. This has been one of the...
  7. M

    Extremely worried please help I beg you.

    Hello, I would like to start out by saying I'm a 5'6 190lbs 13 year old male. I have IBS C ( Irritable Bowel Syndrome with Constipaton ) I take two doses of Mira Lax a day with a Probiotic and Fiber Gummies. I've been worried about having ALS for about 6 months I believe and really need your...
  8. D

    Could this be ALS?

    Hi all I'm hoping for some input from people who have been through or seen first hand symptoms of ALS and in particular bulbar. Basically for over two months I started with muscle fatigue when walking to work. It was really bizarre as I have never experienced anything like it. I went to my gp...
  9. V

    Vikman's dad

    My dad went into caridac arrest at home today. They were able to get his heart beating again but hes in a coma in icu at the moment went without oxygen for 7 mins. Will know more in the morning after scans and such. Just so shocking because it was so sudden. I mean obviously he has als but he...
  10. S

    Feeling helpless

    Hello, I've been following this forum for quite some time but have never had the time to share. my husband was diagnosed with ftd 2014 ALS june 2015. As of this morning he refuses any help with breathing issues..no oxygen no BiPAP no doctor visits no showering it's been almost 5 days again...
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