oxygen

I'm afraid we are getting closer to the end. Since Hurricane Irma, my dad has just gone downhill extremely quickly. He can no longer hold his head up. We have him in hospice and he is on the "cocktail." These past 2 weeks he has begun sleeping constantly, waking up for brief moments. (This...

Hi guys, My dad got his tracheotomy and ventilator a little over 2 weeks ago. When we were at the hospital, he was doing fine adapting to it. His heart rate was around 70-90. However, we just moved to a nursing facility that has a subacute section and the first week, he was doing fine. But in...

I at the point where FVC is about 20%, and I'm have a lot of trouble breathing. I have had my trilogy adjust 4 or 5 times. I have also had 4 overnight o2 saturation test done. In all the tests my 02 saturation has been between in the low to mid 80,s and that's with oxygen. I also have periods...

Hello, my PALS was diagnosed in May and today had his 2nd ALS clinic visit at Texas Neurology. I’m just not understanding the respiratory numbers. His first visit in July the respiratory therapist said his MIP was -30 and MEP was 93. Today she said he was at -11 for MIP and 48 for MEP. No one...

I'm seeking advice as neither my Pals or Cals reads the forum. I'm a friend of a Pals and Cals. Cals has pneumonia and is in the hospital. Pals is home with a caregiver. Pals is now coughing. They have tried the vest which helps for a short period of time. Caregiver is having trouble...

After seeing pulmonologist dr I am a little confused. He says my last testing indicates that my co2 it normal at 41 range being 35-50 However my Oxygen is low at I think he said 67 . I know these are just numbers and I intend to not concern myself to much about hem but here's the thing. With...

Hi All, Sorry for not being on more often. Life has become hectic - as it is for all of you - and I find it difficult to read and/or post much. But you are all in my thoughts daily. I have a question because you continue to be my go-to source of information. I did a search and didn't find an...

I hope some of you smart people (you know who you are!) can help me understand what ALS is in laymen's terms. Here is what I think - your feedback and corrections would be great. ALS is an over production of a neuro transmitting chemical that causes neurons to fire. This over production in...

I thought I knew the answer to this and was about to attack a Wired article (a guy held his breath for 24 minutes!) and thought I'd check first. Well, surprise! This is but one of many articles saying BOTH are detected! And this one, at least, says we're more sensitive to CO2! How Your Body...

Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...