onset

  1. W

    Looking for a glimmer of hope

    Hello Everyone, I would like to start off with saying that I have utmost respect to all of PALS and CALS who despite the illness did not forfeit and are fighting and living each day as happy as it's possible. I have lurked the board for 2 months (read ALL stickies) now and I've decided I...
  2. S

    Was EMG performed correctly?

    As a follow up to my previous thread that was closed, I had a clean EMG on Friday. The NCV did end up showing that I have moderate carpal tunnel in my right wrist and mild carpal tunnel in my left wrist. My neurologist also thinks that my hands are just naturally the way they are, he said it's...
  3. N

    02 or no 02?!

    my PALS this morning is struggling to breathe, 02 sats are bouncing around 81-88 all morning and he looks uncomfortable. Gave him an Ativan and morphine but doesn't seem to be making him comfortable. I wouldn't say agitated, just uncomfortable. The RT is suggesting some 02 for comfort and I'm...
  4. A

    Probable ALS - no diagnosis

    First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...
  5. A

    This one’s for the worriers

    Hi all, I’ve been lurking here on and off for a little over a year and have even caved and posted a few threads. I just had my third clean EMG in 12 months. There was a point shortly after the onset of my symptoms where I was convinced I had ALS. I would come home from work and basically take...
  6. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
  7. E

    Speech Therapy for PLS

    I posted this on the general forum, but thought it was more appropiate for this site... Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is...
  8. E

    Speech Therapy for PLS

    Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is unaffected yet and his lung function and breathing are perfect as by the latest tests, done...
  9. W

    Is it ALS?

    I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing. For about 10 days I have experienced sudden muscle weakness. I am still a 5/5...
  10. P

    support for children and grandchildren of PALS

    I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our...
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