onset

  1. M

    I have real weakness - please help

    I haven’t been here in a while. Busy having kids and all that. I had a baby six months ago and have not really been paying attention to myself. I have noticed thought that I am unable to lift things with my right arm when it is extended I’m a certain way. I became curious so I tried lifting...
  2. T

    Symptom Questions from 35/m

    Hello, I hope you are well or as well as possible. Thank you for checking this thread and thank you for making this section of the forum. It must be very difficult for some members. Your patience for those of us with questions is greatly appreciated. I've refrained from ALS symptom-checking on...
  3. J

    Can't control my fear.

    Hi everyone. I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it...
  4. T

    How to Swim in Ocean

    Hi - I'm a cALS to my husband who has limb onset. His fav. thiing to so is swim in the ocean -- anything you all know about that can help him? Thank you!
  5. T

    What do these symptoms sound like?

    Hello all, I am sorry to bother you with this, and I promise I did read the sticky. However, I am frightened as hell, and could use some guidance. I am a 29-year-old Caucasian male with no family history of neurological diseases. At some point in December 2018, I started to notice...
  6. affected

    aussie research leaps

    Some of you know of Neale Daniher who is a bulbar onset PALS and started the Big Freeze to raise awareness and money to fight MND. This is what is happening with the money at the moment...
  7. R

    Worsening Symptoms and Second EMG

    Previous thread: Terrified Bulbar or Limb Onset? Varying Symptoms Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of...
  8. B

    C9 carrier with possible symptoms

    Hello everyone! This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy. This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
  9. T

    Sleeping all the time...early stages

    Hello: My husband was diagnosed this past Dec. He has limb (legs and arms) onset. He is still working and driving. But...he sleeps a lot. Like almost all the time when he is not at work. I'm just trying to be patient with it and I know extreme fatigue is part of this awful disease. I...
  10. D

    Worried

    Hey everyone, thanks for reading. I am a 24 year old girl, no family history of ALS. I KNOW that I have health anxiety but I can’t seem to shake the idea that what I’m experiencing might be ALS. So two weeks ago I was home and my finger was twitching. Naturally I panicked and googled and ALS...
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