ohio

  1. G

    Question about EMG

    Hello, everyone I have been reading these forums or awhile now and didn't feel the need to post and bother anyone as I found everything I needed to know on other threads, well mostly. I have been having symptoms for about 19 months, it started with a non stop twitching bicep for a month then...
  2. L

    PLS Caregiver Support

    Hi, can any one help me understand the PLS side of ALS? Any Support groups? And, are there any Make a Wish groups out there for ALS/PLS patients. There is a family wedding/reunion in Ohio in July that my mom wants desparately to go to and I want to take her but fianances are a major hurdle...
  3. marypat

    diaphragm pacer OSU

    OSU (ohio state university) is looking to start their diaphragm pacers. if all goes well i will be one of the first but they need another pals to enroll. contact OSU neuro clinic. dr kolbs staff if you are interested
  4. shelleynshaggy

    Need a Little Help

    Hello everybody - I am hoping you can help us out by sending a quick email! For Christmas I got Jim tickets to see Jeff Dunham - the ventriloquist comic. He is one of Jim's favorites. He still laughs at him - something VERY rare! I would like to try to get Jeff to meet Jim at the show. Can...
  5. N

    Your Diagnosis Short Story

    First of all , I would like to say thanks to those who share and inspire others...May you be truly blessed! I speak only for myself here, and instead of asking a multitude of questions, I would love to hear some of your stories of diagnosis. I feel at times that doctors are impervious to the...
  6. D

    Atrophy

    Hey Everyone, Since my last post I have been trying to remain confident about the situation in which I seem to find myself in. However, I cannot seem to get over this fear of having some incurable neurological disorder. In the past two years, since the onset of my symptoms, I have seen...
  7. marypat

    Hi to all,

    Hi to all, I’ve been visiting this forum for awhile but haven’t posted anything before. As it is January and most people have their resolutions it’s my month of firsts…first time I admitted I’m not going to drive again, the first fall..the first time I used a cart to shop with….the first time I...
  8. X

    Lots of questions, very scared. Bulbar at 27?

    Thank you for your time and consideration, in advance. When my twitches started nearly 7 months ago, they had me panicking. In addition to the twitching, my only other symptoms were buzzing sensations through my feet and legs, however, at times, they went up through my trunk and even neck. I...
  9. JennB329

    When I grow up, I want to...

    I've struggled with that question for a long time... what do I want to do when I grow up? Saddly, I've been "grown up" for some time and I'm still not sure, at least not until recently. Mom & I were having a discussion about how we feel we could help people who are, unfortunately, just getting...
  10. Lobster

    New model of ALS is based on human cells from autopsied tissue

    From the NIH website: By isolating cells from patients' spinal tissue within a few days after death, researchers funded by the National Institutes of Health have developed a new model of the paralyzing disease amyotrophic lateral sclerosis (ALS). They found that during the disease, cells called...
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