nurses

Well everyone this is the first I've been on in months and just wait till you hear what I've been through! On August 18th ( our 25th Wedding Anniversary), I suffered a massive pulmonary embolism that is also called a saddle embolism. I actually arrived at the hospital DOA, they brought me back...

My brother has been in intensive care for the past week on life support. I spent the day with him yesterday and one of the nurses struck up a conversation with me. She asked me if I was a relative and I told her he is my brother. She then told me she's been a nurse for 24 years. Then she asked...

Today mom had her clinic visit. Her fvc numbers were really low. She tested at 55 two months ago, and before that she had maintained a constant 60 since October of 2014. Today she tested at 17. I was unprepared to hear such a low number since she doesn't outwardly show such marked decline. When...

First I appreciate your message to newcomers there sure is alot of misleading information on the net. Second I'm not really asking if I have ALS, as I have been told 3 times I do and now find myself at one of the leading ALS centers in the south, I have had 3 emgs first neuro said it was...

Great minds think like You're a 19 year old kid. You are critically wounded and dying in the jungle somewhere in the Central Highlands of Viet Nam . It's November 11, 1967. LZ (landin...g zone) X-ray. Your unit is outnumbered 8-1 and the enemy fire is so intense from 100 yards away, that your CO...

There appears to be considerable confusion among patients, doctors, caregivers, and regulators about the right of ALS patients to elect who will provide their care. The rule is actually very simple: an ALS patient should have the right to elect who will provide their care—licensed or...

I'm new here! I found this site because I'm trying to sell some of the abundance of medical equipment we accumulated while my Dad was sick. But, since I'm here... My father's name is Mark T. Hoops. I'm not sure yet if it's unhealthy for me to use the present tense, but there will never be...

Raymond did fine, all the discussions about oxygen and ALS really helped us today, I was able to be an informed advocate for him, and shared info with a couple of great nurses who hadn't dealt with ALS patients before, so a huge thank you! Now a practical question, what do we do with this tube...

This is my first post. My mother is 65 and was diagnosed with ALS and FTD two weeks ago. We knew something was happening with her because little pieces of her were slipping away. The symptoms began in Nov. 2013. It started with upset emotions, moved to losing the ability to speak, then swallow...

Ever have one of those days? Ever feel useless? Bit of background...if you're a 'local' you attended the same school as your great-great-great....you get it. I'm that kind of local, so it's not that I know a lot of people really, but of them, like the 'jones' family in my story. Three years...