night

  1. P

    Poem: Names

    Names Dennis , Brad, Scott, David, Andre, Ryan, Linda, Russ, Don, Donnie, Tony. Marty, Steve, Pete, Sue To most, these are just a few names. We run across them everyday. Most are husbands, wives,fathers, brothers, sisters, mothers. But to a very few they are more then just a name. They...
  2. T

    Radiation therapy for secretion management

    Was hoping for feedback from this useful group on their experience with radiation therapy for secretion management. To date, we have been managing my PALS secretions with a combination of scopolamine patches, glyco subQ injections (pills were not effective and he now takes injections every 4...
  3. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
  4. G

    Not sure what's going on

    Hi everyone, First of all just want to say thank you for what you guys do and provide everyone on this site. I'm so sorry for anyone who is impacted by this disease in any way. I've read the sticky portion which was reassuring, but I'm still freaking out. Let me explain.. Around thanksgiving I...
  5. M

    Could you help me out with my symptoms?

    I’m so sorry to be posting here, I just feel so nervous and can’t get into the neuro for a few months. Thank you for taking time to read this. I have had muscle weak in my right arm since November to the point it’s hard to lift my arm to brush my hair. I now have it in my left arm as well, also...
  6. E

    Balance issues

    Hello everybody, I have a question that I felt like couldn't be answered in the Stickies. For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the...
  7. K

    Air Hunger When Laying on Left Side

    My PALS is on Trilogy for about 12 hours at night and another 4 during the day. On two occasions, he has had difficulty breathing on his left side at night while on the machine. The first time it took about 30 minutes of sitting up to recover but last night it was longer. Our RT recommended...
  8. Kristina1

    spastic gait, walking on forefoot/toes

    The main reason I use a walker at home, wheelchair out is my spastic gait makes walking very difficult and a huge fall risk. My spasticity is such that I can't put my heels down when I walk, I walk on the front of my feet, almost on my toes, and put my weight on the outer sides of my feet. At...
  9. KarenNWendyn

    The sex pill

    A woman goes to the doctor and tells him her husband is losing interest in sex. So the doctor gives her a pill, but warns her that it's still experimental. He says she should slip it into his food at dinner, so that night, she does just that. About a week later, she goes back to the doctor...
  10. KarenNWendyn

    A lawyer married a woman....

    A lawyer married a woman who had previously divorced five husbands. On their wedding night, she told her new husband, "Please be gentle, I'm still a virgin." "What?" said the puzzled groom. "How can that be if you've been married five times?" "Well, Husband 1 was a sales representative; he...
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