nif

  1. KarenNWendyn

    Question for you wheelchair geeks.

    I just received a lovely Permobil F3 from my ALS loaner closet. I can still walk using a rollator or cane but have slowed way down. The tipping point (pun intended) recently occurred while out on a walk with my dog and my walker. I was bending over to pick up poop (the neighbors love it when...
  2. Nuts

    Mixed up the meds....

    One of my least favorite tasks is sorting pills, so I do them in advance in nifty sorters that have four boxes for each day of the week, and each day's pops out to be easily carried throughout the day. One set of boxes for me, and one, all blue, for Matt. Getting ready to take him out for...
  3. krnNdug

    NIF - please dumb down

    Can someone help me please. I searched for NIF and saw that it is Negative Inspiratory Force. My neurologist tried to explain it to me but I didn't sleep well the night before so I sort of missed it. Can someone explain it maybe on a 1st or 2nd grade level, hehe. Or in layman's terms. MY FVC...
  4. J

    Is this end stage?

    My husband was diagnosed in dec 2011. At that time his symptoms were loss of use of hands, muscle twitching, some weight loss, respiratory distress, paralyzed disphragm and diffuse muscle atrophy. Now, he has lost the ability to walk, has an nif of 10 , Fvc is 1.78, has severe dyspnea and has...
    • Justsouno
    • Thread
    • ability age atrophy diagnosed fvc hospice muscle muscle twitching nif paralyzed respiratory symptoms twitching weight loss
    • Replies: 3
    • Forum: General discussion about ALS/MND
  5. Zaphoon

    PZ's New ALS Self-Diagnostic Kit

    Intentionally Posted In The: Do I Have ALS? Is This ALS? Forum (disclaimer - posted by PZ, a genuine nut job with a fantastic imagination) Hello forum friends! We here at PZ Laboratories, Inc. are excited to announce our latest product, backed by our famous "satisfaction almost guaranteed...
    • Zaphoon
    • Thread
    • als battery bulbar diagnosis do i have als emg forum follies hiv is this als is this als? medical money neurology nif reflex spasms support tongue twitch twitches wanted work
    • Replies: 32
    • Forum: Could this be ALS?
  6. duplinwino

    Need your thoughts on MMN

    I haven't been on in a while and I hope everyone is doing well. I appreciate the messages! I'll try to make this short but my head is spinning after a new visit to a new ALS Clinic yesterday. A little background, DH was diagnosed with MND/atypical ALS early 2007. He has had a fairly slow...
    • duplinwino
    • Thread
    • als bipap bulbar clinic diagnosed diaphragm early emg fvc hope ivig mmn mnd neurologist nif progression pulmonary function test respiratory slow progression test wanted young
    • Replies: 6
    • Forum: Multifocal motor neuropathy
  7. brendapals

    My 3rd clinic visit update

    Hello friends, I went to IU for my 3rd ALS clinic visit this past Tues, 2/17/09. Here is my brief update: My FVC is 77% and my NIF is 88%, my reflexes are still brisk, my strength in arms, hands, feet, legs are all still strong. My weight is stable, my speech is awful, we talked about the...
    • brendapals
    • Thread
    • advocate als clinic disability fvc ice nif peg shortness of breath speech trach update work
    • Replies: 5
    • Forum: People with ALS (PALS)
  8. L

    What do I tell my in-laws about their son?

    What do I tell my in-laws about their son? My mother in law is 90 and my father in law is 87. We are going up to NY for a weekend for my FIL's birthday and so my husband can see them for the last time. He does not want his parents to know he has ALS since he thinks they will die before he does...
    • leegardens
    • Thread
    • als alsa angry back breathing bulbar cals children cry dementia diagnosis family father ftd goodbye hours ice kids nif night respiratory sad trip ventilator worried wrong
    • Replies: 14
    • Forum: Current caregivers
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