music

First of all I would like to say thanks to everyone for reading my concerns. I have also read the stickies and listen to hip hop music only occasionally. I am a 51 year old male that started with fasciculations around 5 months ago. I had visit with GP and neuro 3 months ago. I had all the...

Hello, One of my best friends of 40+ years was just diagnosed last week with Bulbar Onset ALS and I want to help him in any way I can. We live about 50 miles apart and he is soon to return home to live with his mother. He is 60 years old and cannot speak at all. He is using a walker and...

O.k., many of you know by now that I love music and I often use it to get me through tough times. One of the ways I do this, other than just listening to some of my favorite artists, is to think of a time during my youth that was very special to me. Could be 6th grade when I had my first...

Having a real 'missing Chris' time lately. For some reason I went onto you tube and was listening to some music from an artist I have enjoyed since the 90's. I played a fair bit of her music while Chris was actively dying - it went so well with candles at night to keep a beautiful feeling...

This is a link to a beautiful song for all CALS who have lost their loved one. Music means so much to me and I wanted to share this. Beth Nielsen Chapman - Sand and Water (Lyrics) - YouTube Vince

One thing ALS has a steady supply of.....heartbreak. Those of you who have been on here a while know that my bulbar husband was hanging in there mobility wise, even still doing a little golf and driving. Well, today the clubs were put away and replaced with a wheelchair in the trunk of the new...

Hi everyone. I was wondering if anyone here has experience rapid breathing. My dad's respirations are high (30's) but considered the new 'normal'. He always says he needs to calm down to get his breathing under control but seems unable to do so. I've noticed that when his mind is occupied he...

Today is one of the sad days. Well, one of many sad days in a row. Now that we have most of the equipment she needs, Patti won't use it much, not nearly enough. I can't make her. Once she was a thriving person who needed some practical help from time to time. Now I think she's a dying person...

I sent an e-mail to Fox yesterday after seeing a sneak preview of the first ep of "Empire," a new series in which the protagonist supposedly has ALS, calling them on some of the more obvious inaccuracies. It premieres Jan. 7, so if you see it, don't have great expectations on the disease part...

Good evening I was wondering if anyone had tips for when breathing is difficult? My dad thought he was anxiety but even after taking Xanax he can't catch his breath. I've tried giving him some techniques to slow his breathing pace (in thru the nose out thru the mouth), listening to music with...